Jump to content

Meet the palliative care team!


KatieB

Recommended Posts

Meet the Palliative Care Team

The palliative care team will spend a lot of time with you and your family. They will assess your pain level and other symptoms. They will discuss and explain all of your treatment options. And above all, they will explore your goals so that they can help you match your treatment options to your goals.

But what should you ask the team during your first meeting? Here are some suggestions:

  1. What can I expect from palliative care?
  2. Where will my care be provided (e.g., in the hospital, home, nursing home)?
  3. Who is on the palliative care team?
  4. What are your recommendations for my care?
  5. What decisions need to be made by either my family or me?
  6. Will you help explain my treatment choices and the issues involved in making these decisions?
  7. Will you communicate openly and candidly with my family and me about my illness?
  8. Will you continue to be involved in my care when I am in the hospital (if you are an outpatient).
  9. Will you be involved in my care when I am discharged from the hospital or living at home?
  10. How will you work with and communicate with all my other doctors?
  11. What will you do if I experience severe pain or other symptoms?
  12. What support will you provide to my family and/or caregivers?
  13. Will you still be available to me throughout my illness?
  14. How can I reach you?
  15. What resources do you recommend for me to learn more about palliative care
Link to comment
Share on other sites

  • 1 year later...

I just had my first (tele-health) visit with a palliative care doc--I'm enrolled in a study to assess the benefits of integrating palliative care from the beginning of treatment for everyone, as opposed to bringing them in when nothing else is working to relieve pain/discomfort from the disease or side effects.

I REALLY liked this woman--I am having relatively little in the way of chemo-related side effects (mainly fatigue and brain fog)--so we spent a lot of time just chatting about family, etc. 

One thing I appreciate is that, having met her and being comfortable with her already, I'll probably be more inclined to contact her early on if I run into problems. Otherwise, I'm to have approximately monthly appointments with her. She is also an oncologist, herself, as well as a palliative care specialist, which also makes me feel more comfortable with her knowledge/expertise.

Link to comment
Share on other sites

  • 1 year later...
On 10/9/2020 at 6:39 AM, LexieCat said:

I just had my first (tele-health) visit with a palliative care doc--I'm enrolled in a study to assess the benefits of integrating palliative care from the beginning of treatment for everyone, as opposed to bringing them in when nothing else is working to relieve pain/discomfort from the disease or side effects.

I REALLY liked this woman--I am having relatively little in the way of chemo-related side effects (mainly fatigue and brain fog)--so we spent a lot of time just chatting about family, etc. 

One thing I appreciate is that, having met her and being comfortable with her already, I'll probably be more inclined to contact her early on if I run into problems. Otherwise, I'm to have approximately monthly appointments with her. She is also an oncologist, herself, as well as a palliative care specialist, which also makes me feel more comfortable with her knowledge/expertise.

You posted this about six weeks ago. We are happy you found a lovely lady to make you feel comfortable. That’s a huge positive in this journey.
 

My husband was diagnosed 4 months ago. We wanted to know:

How is your palliative care (PC) going? How do you feel about it being integrated with your other treatments?   
He has two oncologists, a social worker on standby, maybe a dietician (I’m unsure though), and the NP for the main oncologist. Would this be the PC group? 
If they are not the PC group how do we request it? 
 

Thank you so much for your insight on palliative care. It’s very helpful to hear how others have approached and using it. May you have a blessed day! 
 

~Mares

Link to comment
Share on other sites

Actually, I posted that in 2020. I haven't had to reach out to them for care as yet, though I may need to soon. I'm back at Penn Medicine for this trial (I was in a trial at a different medical center this summer, so I discontinued the visits).

Thanks for the reminder--I'll make it a point to drop them a line.

Link to comment
Share on other sites

×
×
  • Create New...