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One thing leads to another! Finally a PDL#!


Barb1260

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Pulmonologist put me on an inhaler Tuesday and seems like I am having a side effect to that-vertigo.  Called both the pulmonologist and the onc's office to figure out if its the inhaler or the Imfinzi.  It's now a process of elimination, stay off the inhaler and see if the dizziness subsides, if not it's the Imfinzi.  BUT, as I was speaking to my favorite onc nurse, I asked her why I can't get a PDL # so I know if this is all just a waste of time.  Lo and behold, that test was done way back in December from the biopsy, its is 90% expression-YAY!!!   I was under the impression that the PDL was part of the biomarker test-I was wrong and could have saved myself months of mental anxiety if I would have asked the correct question.  And they probably told me this way back then but my head was spinning with the dx and I probably let it float right over my head.   Live and learn.  Have a great holiday weekend.

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I will Paula. It’s a relief to know that this doc has been on top of things all along. And we’re all leaning toward the inhaler being the culprit so give me infusion #3 and let’s destroy this uninvited guest. 

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Bingo Barb...PDL-1 expression @ 90%. I really think the scientist who named Programmed Death (PD) should receive some kind of reward.  I love thinking the drug lines up all the cancer cells and says: "prepare to meet your maker at 0900 hours!"

Stay the course.

Tom

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Ah hah! You are a mutant too!  I just knew it!  In this Month’s Lung Cancer Living Room there was a discussion about the PDL 1 and immunotherapy being reclassified as targeted or personalized therapy.  High ho the cancer witch will soon be dead!  What awesome news.  Remember back in the early diagnosis days??? You’re on a winning streak!  Too bad they didn’t tell you months ago!  Whoo hoo! 

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They probably did tell me, probably at the first onc visit and I remember my head spinning with a million things. Better late than never. 

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Yeah, the first couple of visits are just scrambled egg land no doubt.  Still something that important you would think should be over emphasized, but you are a Jersey Girl at heart so persistence paid off!   Thank God for those oncology nurses!!! 

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