PitbullDad Posted June 11, 2019 Share Posted June 11, 2019 2008, tonsil cancer, surgery, 3 cisplatin, 35 rads, NED for 7 years 2015, total laryngectomy and total glossectomy, surgery, NED 2017, two 1CM nodules found in right lung, surgery, NED 2018, one 2CM nodule found in right lung, surgery, NED 2019, on Opdivo (immunotherapy) for next two years. I have been told that your cancer is defined by where it originated, so technically it's H&N cancer. Nobody has called it "small cell" etc. Link to comment Share on other sites More sharing options...
Robert Macaulay Posted June 11, 2019 Share Posted June 11, 2019 Hi 2002 Throat cancer 35 rads, 2003 total laryngectomy 2017 nodule in tight lung and lymph nodes 35 rads and chemo 2018 Now on the last five Duvalumab Infusions (immunotherapy) For the last year Nearly there. lol I was told it it very rare H&N cancer travels.? Link to comment Share on other sites More sharing options...
PitbullDad Posted June 11, 2019 Author Share Posted June 11, 2019 Refreshing to know that there are others just like me (almost). I find it interesting you had rads BOTH in the H&N area and lungs. I was told that I could not have rads in the H&N area again because they used heavy doses, but I don't think it's ruled out as an option for lung nodes if they recur. It has not been suggested as an option for the past two lung node episodes. What I have been told by oncologist is that if H&N cancer travels, it will most commonly be to lungs. Brain would be my worst fear. Mark Link to comment Share on other sites More sharing options...
Robert Macaulay Posted June 11, 2019 Share Posted June 11, 2019 Yes i was under the same impression about radiation the second time, and asked, they checked my records from the previous and the location was far enough away to allow radiation on my lung. Yes the key is to stop the cancer spreading and that is the main goal of Duvalumab . Link to comment Share on other sites More sharing options...
BridgetO Posted June 11, 2019 Share Posted June 11, 2019 Hi Pitbulldad and welcome. You've really been through it! I'm glad you've connected with us and that you'e heard from Robert. Hang in there and keep posting. Bridget O Link to comment Share on other sites More sharing options...
PitbullDad Posted June 11, 2019 Author Share Posted June 11, 2019 Bridget, Thank you. I am early in the learning curve to see how to make the most of this site. It appears there may be others with circumstances similar enough to mine to "chat" with and learn from, which I look forward to. Mark Link to comment Share on other sites More sharing options...
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