Newbie Nancy

[Nancy Ann]

I have had an annual CT scan for lung cancer the last 6 years, a nodule was detected that first year.. No change the next 4 years.  My scan in May showed the module had grown to 13mm.  My primary doctor referred me to the Lung Clinic and I had a needle biopsy last week, the result was a cancer diagnosis.  My team says it looks like stage 1, but we’ll know more after my PET scan on the 22nd.  Then a 7-10 day wait for results. I am so nervous that the cancer may have spread. It’s a comfort to have found this forum and I look forward to becoming a part of it.

 

[Isabelle49]

Nice to meet you Nancy. Sorry to meet you here. Praying you PET scan looks perfect!!! I was diagnosed with NSCLC this past June, confirmed with biopsy and found to be non-operable, with multiple lymph nodes affected. Will be starting Chemo this coming week, some anxiety related to that, especially related to nausea. I don’t don’t do nausea well at all. No matter what else happens, no nausea please!!! 

Please keep us posted on your follow up studies. I will keep you in my prayers. Blessings to all.

[LouT]

Hi Nancy,

Welcome to the forum.  Sorry that you need to be here, but you'll find this a safe place to share, learn and gain support from people going through the same things that you are having to deal with.

The diagnosis phase of this disease can sometimes seem extremely slow and painful, but it is an important time for you and your medical team.  Not only for you to understand your diagnosis, but also for the team to compile the plan to treat you for this disease.  Please make sure to take notes in your meetings with the doctors, bring written questions on anything you want answers to and make sure that you are comfortable with the care you are being given at all times.

I was diagnosed as Stage 1a NSCLC Squamos Cancer after a routine CT Scan and an open thoracic biopsy.  I had a lobectomy and now at 9 weeks after my surgery I have pretty much resumed all of my activities (including aerobic and weight workouts).  And I'm awaiting my first follow up CT Scan in August; after that they will be every 6 months for the first two years.  Since mine was caught in an early stage and my lymph nodes, surrounding tissue and PET were all clear, no other treatment is recommended at this time.

Of course the best thing anyone could hear would be that a nodule is NOT malignant, but even when it is there have been great strides in treating this disease with much improved outcomes.  BTW, please stay away from Google and the web as their prognosis estimates (which are based on past 5 year averages) don't reflect the many advances made in the past 5 years.

This is a great group of people to be with at this time so please ask any questions you have and don't hesitate to reach out.  In the meantime, we'll all be hoping for the best results from your PET.

Lou