Tom Galli Posted September 11, 2019 Share Posted September 11, 2019 I had a pleasant reunion with my CT technician Chris who's been scanning me for nearly 16 years. He displays family photos in the scan room and I realize I've watched his children grow up. Chris knows I'm a "hard stick" so he passes me off to the oncology nurses to rig the IV for scan contrast. I was mildly sedated with valium on board, and the nurse was both lucky and good for the rig was installed after the first stick. I also had a surprise blood test which I hope applies to my oncology consult on September 16th. This scan was a bit unusual covering neck, chest and pelvis. My doctor is exercising lots of caution and I'm happy with that. So, six days of scanziety countdown to results revealed. I'm flooded with memories of the many recurrences I've had but... I'll stay the course. Tom Link to comment Share on other sites More sharing options...
Lin wilki Posted September 11, 2019 Share Posted September 11, 2019 Yes Tom stay the course. Good luck My turn for first scans next week Link to comment Share on other sites More sharing options...
Rower Michelle Posted September 11, 2019 Share Posted September 11, 2019 Lock & load! Waiting sucks. Time to start bribing the schedulers as not to wait a week for results. If there are any issues they’ll be all over it immediately. Enjoy that benzo haze! Link to comment Share on other sites More sharing options...
Moonbeam Posted September 12, 2019 Share Posted September 12, 2019 Praying for good results for you and My husband!!! Double whammy results. I’m feeling good for both of you. You for another NED and he for chemo/immunotherapy working! You will stay the course my friend! Sending lots of love and prayers! xx Link to comment Share on other sites More sharing options...
ale Posted September 12, 2019 Share Posted September 12, 2019 Let's go, Tom... kiss from Italy!! Link to comment Share on other sites More sharing options...
Curt Posted September 12, 2019 Share Posted September 12, 2019 Thinking about you Tom. Mine is on Monday. Fingers crossed for both of us. Link to comment Share on other sites More sharing options...
Deb W Posted September 12, 2019 Share Posted September 12, 2019 Thinking of you Tom...I understand the scanziety and I'll use your words...stay the course! Link to comment Share on other sites More sharing options...
Rower Michelle Posted September 12, 2019 Share Posted September 12, 2019 Wow Curt- that time went fast. Hoping you get another all clear! Link to comment Share on other sites More sharing options...
Barb1260 Posted September 13, 2019 Share Posted September 13, 2019 Fingers crossed Tom. Link to comment Share on other sites More sharing options...
Tom Galli Posted September 13, 2019 Author Share Posted September 13, 2019 Just got an email from my Medical Oncologist: NED! The worry evaporates. Tom Link to comment Share on other sites More sharing options...
Barb1260 Posted September 13, 2019 Share Posted September 13, 2019 Yay! Enjoy the weekend😎 Link to comment Share on other sites More sharing options...
Rower Michelle Posted September 13, 2019 Share Posted September 13, 2019 As you say, “that’s NEDtastic! So stay the course!” Hooray! Link to comment Share on other sites More sharing options...
Lin wilki Posted September 13, 2019 Share Posted September 13, 2019 Best news. Enjoy the glow Link to comment Share on other sites More sharing options...
Deb W Posted September 14, 2019 Share Posted September 14, 2019 Fantastic news! Link to comment Share on other sites More sharing options...
Lisa L Posted September 14, 2019 Share Posted September 14, 2019 Fantastic Link to comment Share on other sites More sharing options...
ale Posted September 15, 2019 Share Posted September 15, 2019 Well, very well!!! Kiss from Italy Link to comment Share on other sites More sharing options...
Moonbeam Posted September 16, 2019 Share Posted September 16, 2019 Fantastic!!! So thrilled for you, Tom!!! Hubby finds out tomorrow morning of chemo/immunotherapy is working. 🙏🏻 Xx Link to comment Share on other sites More sharing options...
PaulaC Posted September 17, 2019 Share Posted September 17, 2019 Awesome news! Link to comment Share on other sites More sharing options...
Lin wilki Posted September 19, 2019 Share Posted September 19, 2019 Tom I read your book and I certainly respect all the pain you went through. This journey is very new to me. First scan since starting treatment I feel was mixed results Seems there is SO much we don’t know!! Doc said main tumor shrunk but lymph nodes enlarged. They said could just be response to immunotherapy. I WANT MORE clearer results! So now wait till pet scan in 3 months. Too much waiting and wondering! Maybe after I get a few years in I won’t be so crazy! However I see you still worry after all your NED years! Trying to let be what it is. I do feel it’s in the cards but I hate not knowing what that result is. Do I get some good years?? Heres to hoping Link to comment Share on other sites More sharing options...
Susan Cornett Posted September 19, 2019 Share Posted September 19, 2019 There are not enough exclamation marks to accurately reflect my excitement for your NED status!!!!!! So happy for you! Link to comment Share on other sites More sharing options...
Tom Galli Posted September 19, 2019 Author Share Posted September 19, 2019 Lin, Yes NED worry is still something that bothers me. There is no cure for scanziety. But do take time to get to know your oncology team including the nursing staff. As they get to know you, you may find you get a post scan email that communicates an unofficial NED result. Stay the course. Tom Link to comment Share on other sites More sharing options...
LouT Posted September 20, 2019 Share Posted September 20, 2019 Tom, I'm not sure how I missed this, but then once I realized it was earlier in September I had to race down to see the results. WOW!!! Super news. When I think of your story it fills me with a lot of hope and the will to fight through this terrible disease. I can only steal your quote, "Stay The Course!". Lou Link to comment Share on other sites More sharing options...
Claudia Posted September 20, 2019 Share Posted September 20, 2019 Hi Tom! So happy to hear that you had great results on your scan. You are an inspiration to me and to many others on these boards, I'm sure. May you have many more years of clean scans and good health. Thank you for all your posts and.....stay the course. 😀 Claudia Link to comment Share on other sites More sharing options...
Mally Posted September 22, 2019 Share Posted September 22, 2019 I am so happy for you Tom to get the great results of NED ...I've got a week and a half to get scans and results so I'm hoping to join the ned club too .. Link to comment Share on other sites More sharing options...
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