Isabelle49 Posted September 14, 2019 Share Posted September 14, 2019 One of the chemo drugs I have been receiving is Cisplatin. My hearing is really bad, sounds are very muffled, some peoples voices sound like Minnie or Mickey Mouse, as well as mine. I am reading that this type of loss is irreversible. Appreciate any input anyone has on this subject. Thanks. Link to comment Share on other sites More sharing options...
LouT Posted September 20, 2019 Share Posted September 20, 2019 Isabelle, I've had no chemo so I can't help out from experience, but I wanted you to know that I'm keeping you in my prayers. When I read up on Cisplatin it listed the hearing and ringing in the ears as occurring in about 30% of the patients, but it also said that these side effects normally reverse after cessation of treatment. Your doctor may be able to provide more detailed and experienced-based data on that. Lou Link to comment Share on other sites More sharing options...
Isabelle49 Posted September 23, 2019 Author Share Posted September 23, 2019 Thanks Lou. The craziest thing is I can hear sounds from my ipad perfectly and not necessarily at high volume, but the television is the problem. Wondering if it is the tv itself that is going bad. I had problems hearing the main flatscreen but noticed last night that i could hear it fine. Dunno, wait and see, I guess. Blessings. Link to comment Share on other sites More sharing options...
Rower Michelle Posted September 23, 2019 Share Posted September 23, 2019 Hi Isabelle, I recognize the TV issue, not a problem with the TV but the chemo induced hearing loss. This happened to my mother after she had five rounds of Carbo for her endometrial cancer. She kept calling the TV repair people, probably replaced a TV needlessly too. A trip to the Cancer Center’s hearing clinic solved the mystery. Her hair fell out during chemo, including the small hairs within the inner ear, a well known side effect of the platinum based chemo agents. She did get some high tech hearing aides that solved the problem completely for her. She even went a little on the punk rock side & picked out interchangeable colors (she’s 76 nobody messes with her so why not??). I think the trick is getting a hearing specialist who understands chemo side effects. I’ve had a trip to the hearing clinic too- not much they can do for me (yet). It at least explained the now constant ringing in my ears. Hang in there! Michelle Link to comment Share on other sites More sharing options...
Blossomsmom Posted October 2, 2019 Share Posted October 2, 2019 Michelle, thank you so much for your post! My Mom always had (key word “had”) good hearing. But since having Carbo (from April through July) her hearing is, well, not what it used to be. She thought her ears were plugged so she went to an ENT and he cleaned them out. I noticed after that unlike previous times she saw the ENT, her hearing isn’t any better. I feel like if I approach her about her deteriorating hearing being caused by Carbo (as opposed to her advanced age), she may be more likely to see a hearing specialist. Now to find one that is familiar with the Chemo/hearing loss connection. Thanks again! Link to comment Share on other sites More sharing options...
DarlaK Posted October 12, 2019 Share Posted October 12, 2019 Hi Isabelle I will stark Cisplatin 4 rounds chemo in a few weeks and i was wondering how your hearing loss or ringing is now? Im not sure if it is is worse for different ages of adults but it is a concern of mine of many... Link to comment Share on other sites More sharing options...
Isabelle49 Posted October 13, 2019 Author Share Posted October 13, 2019 Darla, I still have it and from what I’ve read it will be permanent. They cause is the death of the cilia (tiny hairs) inside the ear that move and help transmit sound. Link to comment Share on other sites More sharing options...
Susan Cornett Posted October 16, 2019 Share Posted October 16, 2019 Isabelle, I had Cisplatin in 2016. I, too, have the muffled sounds and I have tinnitus. Super Doc told me that both side effects are likely permanent. It's frustrating because I can't enjoy music as clearly/crisply as before. Link to comment Share on other sites More sharing options...
Kleo Posted October 16, 2019 Share Posted October 16, 2019 I had cisplatin last year. My hearing improved SOME after treatments...but I still get tinnitus occasionally. And I can't hear my tv- sometimes. Not all the time and not that bad though. I think it's like everything with chemo....some get it worse than others! Link to comment Share on other sites More sharing options...
BridgetO Posted October 17, 2019 Share Posted October 17, 2019 For a non-lung cancer, I had 6 rounds of cisplatin at half strength, concurrent with radiation, followed by 3 rounds of full strength carboplatin. I didn't have any hearing problems-- everybody is different! Link to comment Share on other sites More sharing options...
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