Lin wilki Posted September 17, 2019 Share Posted September 17, 2019 So some good news. Main tumor shrunk. However other questionable things — lymph nodes enlarged and one small new nodule. Doc said they believe it is immunotherapy response and not progression. So now wait 3 months for PET scan So. Stay the course! Link to comment Share on other sites More sharing options...
Lin wilki Posted September 17, 2019 Author Share Posted September 17, 2019 And. My PDL is 0. Doc said some people with lo PDL do well with immunotherapy so STOP reading! Well I won’t! Link to comment Share on other sites More sharing options...
Rower Michelle Posted September 17, 2019 Share Posted September 17, 2019 Hi Lin- That’s good news, shrinkage is good! Stay away from Dr Google, I saw my Integrative doc just before vacation, she said anything more than six months is already too old to be valid. The immunotherapy response you’ve seen is actually quite normal. There’s so many unknowns with this immunotherapy. Tonight in the Lung Cancer Living Room on YouTube will be dedicated to this type of therapy. Now that might be worth tuning into. Lock & load! Link to comment Share on other sites More sharing options...
LouT Posted September 20, 2019 Share Posted September 20, 2019 Lin, Michelle couldn't be more right about Dr. Google... it sounds like your team has this so continue to learn all you can about your treatment from those you deal with and more reliable sources (I haven't seen this Lung Cancer Living Room, but will check it out). Keep moving forward and we'll be pulling and praying for you. Lou Link to comment Share on other sites More sharing options...
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