Lin wilki 70 Report post Posted September 17, 2019 So some good news. Main tumor shrunk. However other questionable things — lymph nodes enlarged and one small new nodule. Doc said they believe it is immunotherapy response and not progression. So now wait 3 months for PET scan So. Stay the course! 1 LouT reacted to this Quote Share this post Link to post Share on other sites
Lin wilki 70 Report post Posted September 17, 2019 And. My PDL is 0. Doc said some people with lo PDL do well with immunotherapy so STOP reading! Well I won’t! 1 judyb75 reacted to this Quote Share this post Link to post Share on other sites
Rower Michelle 1,333 Report post Posted September 17, 2019 Hi Lin- That’s good news, shrinkage is good! Stay away from Dr Google, I saw my Integrative doc just before vacation, she said anything more than six months is already too old to be valid. The immunotherapy response you’ve seen is actually quite normal. There’s so many unknowns with this immunotherapy. Tonight in the Lung Cancer Living Room on YouTube will be dedicated to this type of therapy. Now that might be worth tuning into. Lock & load! 2 Tom Galli and LouT reacted to this Quote Share this post Link to post Share on other sites
LouT 295 Report post Posted September 20, 2019 Lin, Michelle couldn't be more right about Dr. Google... it sounds like your team has this so continue to learn all you can about your treatment from those you deal with and more reliable sources (I haven't seen this Lung Cancer Living Room, but will check it out). Keep moving forward and we'll be pulling and praying for you. Lou Quote Share this post Link to post Share on other sites
