purrnut Posted January 29, 2020 Share Posted January 29, 2020 Hi, my husband is on his 4th and final chemo (this time with Keytruda) treatment for small cell lung cancer. I think he would be a great candidate for a clinical trial, but I cannot navigate the maze of clinical trials to figure out which one may help him. He is not sick or frail, and is still active and working a full-time job. We've just run out of treatment options when Keytruda stops working (if it works at all). Link to comment Share on other sites More sharing options...
Rose Kaiser Posted January 29, 2020 Share Posted January 29, 2020 I don't have any information on clinical trials, but I did try to qualify for one when I was diagnosed that took your cancer cells and made a vaccine that would be administered after my initial 4 chemo treatments. There was something in my cells that disqualified me from the study..I have been on maintenance of Keytruda and Atlimta since April 2019 and it has been keeping my cancer pretty much at bay so far. My lung cancer had metastasized to some lymph nodes and 3 bone areas before I was even aware I had it. My last PET scan showed a slight increase in the lung tumor and I just completed SBRT radiation on that tumor last week. We won't know how well those treatments worked for at least 3 months. In the meantime, I will remain on maintenance until there is any change on my scans. Link to comment Share on other sites More sharing options...
LUNGevityKristin Posted January 29, 2020 Share Posted January 29, 2020 Hi! LUNGevity has a free clinical trial finder that you can learn more about here: https://lungevity.org/for-patients-caregivers/lung-cancer-101/treatment-options/clinical-trials We also can match you with a Clinical Trial Navigator who is someone that has been through the clinical trial process themselves. https://app.emergingmed.com/lcctal/home If you need any additional information, please let me know! Link to comment Share on other sites More sharing options...
D iane Posted January 29, 2020 Share Posted January 29, 2020 3 hours ago, purrnut said: Hi, my husband is on his 4th and final chemo (this time with Keytruda) treatment for small cell lung cancer. I think he would be a great candidate for a clinical trial, but I cannot navigate the maze of clinical trials to figure out which one may help him. He is not sick or frail, and is still active and working a full-time job. We've just run out of treatment options when Keytruda stops working (if it works at all). Not sure what you mean by final chemo? This is his 2nd or 3rd line treatment? May I ask what treatment(s) he had before? If so, how long between progression? Why wouldn't you ask his oncologist to do a more refined search for you? If not, if there is a certain site you are looking at I do believe you can call or write and they would be able to assist you in matching him up with one he would qualify for. It does look like a daunting task for an ordinary citizen with no medical back round. Link to comment Share on other sites More sharing options...
Rower Michelle Posted January 29, 2020 Share Posted January 29, 2020 The GO2FOUNDATION also has a personalized clinical trial researcher, Dr Cieupk. They are based in California. Dr C can also help guide through the maze of the clinical trial world. There are just too many of them for oncologists to keep track of (which in a way is good news). Michelle Link to comment Share on other sites More sharing options...
BridgetO Posted January 29, 2020 Share Posted January 29, 2020 Hi and welcome! I like Michelle's and Kristin's suggestions about clinical trial navigators. Best wishes to you and your husband. Bridget Link to comment Share on other sites More sharing options...
LouT Posted January 29, 2020 Share Posted January 29, 2020 Hi Purrnut, You've already got some good advice and information to look up from others, but I wanted to welcome you and I hope that the Keytruda does work for your husband and, if not, the information Kristin provided may offer some help. Good luck and please keep us posted. Lou Link to comment Share on other sites More sharing options...
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