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JCM

Malignant pleural effusion

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Hello Fellow warriors,

Are any of you living with MPE? I am accumulating fluid and had it drained once. It is back and I am getting a second opinion.

I am receiving palliative chemotherapy along with Keytruda for stage 4 cancer. I read that prognosis for pleural effusion that’s malignant is 3-12 months. That’s a scary thought. Has anyone had a different experience?

I would appreciate any feedback....

thanks! Jane 

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My husband was diagnosed Stage4a with MPE in  January 2020 ...the MPE was actually there in early December.  He underwent thoracentesis (draining) at least three times a week then an indwelling pleural catheter was installed at the end of January.  His MPE actually dried up about two weeks ago...apparently that can happen with frequent draining through a catheter.  It’s great because the MPE was causing him lots of grief.  He is not on treatment yet ..expect immunotherapy to start in a couple of weeks.  His latest CT scan and bone scan shows no mets elsewhere.  We saw the stats you reference but we don’t believe they reflect today’s treatments.
 

 

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On 2/15/2020 at 2:02 PM, JCM said:

Hello Fellow warriors,

Are any of you living with MPE? I am accumulating fluid and had it drained once. It is back and I am getting a second opinion.

I am receiving palliative chemotherapy along with Keytruda for stage 4 cancer. I read that prognosis for pleural effusion that’s malignant is 3-12 months. That’s a scary thought. Has anyone had a different experience?

I would appreciate any feedback....

thanks! Jane 

My mom is currently having the same symptoms with MPE. I've been draining the catheter for nearly 4 months now. Every other day. About 500mL of fluid every time. It used to be 1000mL. Its very concerning for me. I have read the prognosis, and it's terrifying.

 

How is your MPE holding up, has it stopped? My mom starts a new chemo next week hoping it puts a stop to this fluid.

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