Jump to content

Recommended Posts

May2

Age: 42 

Recently Diagnosed 1/16/2020 

NSCLC RET Mutation, stage IV. 

Currently I am on Keytruda,immunotherapy.

Started my first treatment two weeks ago, I am scheduled for my next treatment next Friday. 

Doctor said to do my scans 2 weeks after my second treatment of Keytruda. If there is positive response we will continue. 

If Keytruda is not effective he will add chemo. 

Hoping Keytryda will have a positive effect.

🤞🏻🙏🏻🤲🏻🤲🏻

Let me know if you relate.... 

Share this post


Link to post
Share on other sites

I was diagnosed in January 2019 with Stage IV NSCLC and was on Keytruda (PD-1 mutation), carboplatin and Alimta for 4 treatments. I am currently on Keytruda and Alimta and have been since June 2019. I have been having scans every 3 months and the treatments were reducing the size of my lung tumor until my last scan in December. The spots on my bones & lymph nodes showed no increased activity. I had SBRT radiation on the lung tumor in January and won't know those results until I have a PET scan in at least another 3 months. If the scan is done too soon it tends to show false positives. Although I am scheduled for a CT scan this month.

I am sure praying the Keytruda alone is working for you. My cancer hasn't spread to any other major organs so far and that has been a relief. If the Keytruda/Alimta can keep the spread at bay, I can live with that.

Good luck!

 

Share this post


Link to post
Share on other sites

Sorry you are here but welcome. My wife was diagnosed 10/31/19 with stage 3b. Her Dr. started her with Keytruda and Chemo and did 4 rounds 21 days apart, after which she was scanned again and found her tumor had shrunk. Her Dr. now has her on maintenance of Keytruda and Pemetrexed Disodium every 21 days and she gets her 2nd round of maintenance on Monday. One of the good things  is the 1st 4 sessions took about 6 hours and the maintenance takes 1 1/2 hours. Others here have said the Keytruda works well but is slow. We are just happy we are making progress. I hope it works for you as well. Keep us informed.

Share this post


Link to post
Share on other sites

Welcome, May. I have been staged yet - in the waiting period.  Just wanted to send you good thoughts.  

Share this post


Link to post
Share on other sites

May 

Wanted to "officially" welcome you to this great site. I see you have been taling advantage already and that is great. Wishing you only the best going forward.

I take what I am thinking of as my second to last step into the unknown tomorrow. First round of Chemo. Once that is done I will take the final step...radiation. But one step at a time for both of us eh?

Peace

Tom

Share this post


Link to post
Share on other sites
2 hours ago, Scruboak said:

Welcome, May. I have been staged yet - in the waiting period.  Just wanted to send you good thoughts.  

Thank you🙏🏻🙏🏻  Keep me posted 

Share this post


Link to post
Share on other sites
1 hour ago, TJM said:

May 

Wanted to "officially" welcome you to this great site. I see you have been taling advantage already and that is great. Wishing you only the best going forward.

I take what I am thinking of as my second to last step into the unknown tomorrow. First round of Chemo. Once that is done I will take the final step...radiation. But one step at a time for both of us eh?

Peace

Tom

Thank you, yesss one step at a time. 
Wishing you the best. 

Share this post


Link to post
Share on other sites
23 hours ago, Robert A. said:

Sorry you are here but welcome. My wife was diagnosed 10/31/19 with stage 3b. Her Dr. started her with Keytruda and Chemo and did 4 rounds 21 days apart, after which she was scanned again and found her tumor had shrunk. Her Dr. now has her on maintenance of Keytruda and Pemetrexed Disodium every 21 days and she gets her 2nd round of maintenance on Monday. One of the good things  is the 1st 4 sessions took about 6 hours and the maintenance takes 1 1/2 hours. Others here have said the Keytruda works well but is slow. We are just happy we are making progress. I hope it works for you as well. Keep us informed.

Thank you for sharing.  I am happy you are making progress and seeing good results. 

I saw four doctors before I started.  Two of them wanted to do the combination, chemo and immuno. The other two were very hopeful that immunotherapy should work. They said since my PD-L1 is high, there is a high chance That Keytruda will work a lone. 
 

They felt trying Keytruda for 2-3 treatment is worth it to find out if it will work alone before to introducing aggressive treatment. 
 

When The time came for me to make a decision, I had to go with my gut Feeling.  I Felt more comfortable going with the immunotherapy approach. 
 


 

 

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Restore formatting

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...