Majandra Posted March 29, 2020 Share Posted March 29, 2020 Hello. Any extensive SCLC survivors here? Sorry if this has previously been asked as I’m new to the group. Just looking for hope for my mother! I believe statistics are for statisticians, but I know there’s some truth to it. Thanks for any feedback. Christelle Link to comment Share on other sites More sharing options...
MyWifeSCLC Posted March 29, 2020 Share Posted March 29, 2020 Hi Christelle .. welcome to the forum. I'm sorry to hear about your mother. People on this site are really great. I'm "newish" to the forum as my wife was diagnosed limited stage SCLC in January (see multiple posts). Can you give us more information about your mother? Metastases locations, what treatment has been planned, has she started treatment, etc. Treatments may differ between countries but some folks here may share their experience. There are survivors out there and hopefully some will chime in on this forum for you. Steve Link to comment Share on other sites More sharing options...
Majandra Posted March 29, 2020 Author Share Posted March 29, 2020 Hello Steve from Luxemburg (sorry in advance for the future mistakes I may make, english isn’t my mothertongue). My mother has 58 years old. She was diagnosed with an extensive small cell cancer that has spread to his liver. She was diagnosed on 13th March and she began his first chimio 14th March. The 2nd chimio was this Monday for 3 days. She's been offered to do the original carboplatin/etoposide regimen. Dr says there is no cure and give us few months .... I’m so sad and terrify. I’m searching here hope, testimonies. People with similar diagnosis who are alive for years. Thanks in advance for your future answer. Christelle Link to comment Share on other sites More sharing options...
Tom Galli Posted March 29, 2020 Share Posted March 29, 2020 Christelle, Welcome here and very sorry to learn of your mom's diagnosis. Your written english is superb! Your mom is currently receiving what in the US is termed "First Line (1st treatment) Standard of Care." I'm hoping this treatment does arrest her cancer. In the US, we now have immunotherapy treatment for those who complete the first line therapy. The immunotherapy drugs Opdivo or Keytruda may be available to treat your mother is her disease progresses after her first line treatment. If her current therapy reduces the metastasis to one location, precision radiation (SBRT or stereotactic body radiation therapy) might also be an option of care. You should ask your mom's doctors about these treatments and availability in Luxembourg. In this community, we don't use the word cure because all forms of lung cancer have high incidents of recurrence after "successful" treatment. We use no evidence of disease or NED as our desired outcome. Stay the course. Tom Link to comment Share on other sites More sharing options...
Majandra Posted March 29, 2020 Author Share Posted March 29, 2020 Thank you Tom for your answer. Yes I will ask the doctor. Immunotherapy is available in Europe too. Do you know persons who are Ned for years? Christelle Link to comment Share on other sites More sharing options...
Tom Galli Posted March 29, 2020 Share Posted March 29, 2020 Christelle, Read here, here, here, here, here, here, and here. Just keep reading down the small cell thread. Stay the course. Tom Link to comment Share on other sites More sharing options...
Majandra Posted March 29, 2020 Author Share Posted March 29, 2020 Thank you, I will read it! Link to comment Share on other sites More sharing options...
Judi snavely Posted January 16, 2022 Share Posted January 16, 2022 I was diagnosed with Limited SCLC March 2014. I was given 18 months to live, it is now January 2022! Link to comment Share on other sites More sharing options...
LouT Posted January 16, 2022 Share Posted January 16, 2022 Judi, Yay!!! I'd love to hear your whole story. It would be an inspiration to many. Lou Link to comment Share on other sites More sharing options...
BridgetO Posted January 17, 2022 Share Posted January 17, 2022 Great to hear this! I agree with Lou that your story would be an inspiration to many. Link to comment Share on other sites More sharing options...
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