ashleybart Posted May 12, 2020 Share Posted May 12, 2020 hi all, my dad was recently diagnosed with stage 3 SCLC. i'm truly devastated. he is my best friend and i would do anything for him. i'm here because i'm looking for advice on how to best support him through this journey. i'm already having concerns with the kind of care he is receiving. he was initially told by his pulmonologist that there is no chance for remission with SCLC because of how aggressive it is and that treatment was used to slow down the progression of the disease. he told my dad he could have a few months or he could have a few years. that doctor referred him to a cancer specialist who is now telling my dad that there is a chance for remission and he could be with us for 5 years. the cancer has yet to metastasize however my fathers treatment plan seems highly aggressive. he has 3 spots on his right lung with the largest being 15mm. the plan is for him to do a total of 6 weeks of treatment over a 12 week period. the on weeks he will receive 5 rounds of radiation and 3 rounds of chemo. once that is over the doctor will perform radiation on his brain in an effort to "zap" any cancer cells that may not be visible on an mri. i asked my dad what stage of stage 3 he has and he said the doctor didn't say. this doctor also told my dad he would be able to drive himself to his treatments because his is an otherwise healthy person. i don't believe anyone would be able to do this. my dad won't get a second opinion. i've already told him i will support him in whatever he chooses to do even if that means no treatment at all. i just want him to be as informed as possible but in the end this is his battle and my job is to be there for him with patience and understanding. i know he is finding comfort in talking to me about everything because there are some things that i understand. not because i have or have had cancer but because i have chronic health conditions and they can be pretty brutal to treat. i know the frustration of navigating a team of doctors and having all of them present different opinions and treatment options, being poked and prodded like some sort of science experiment, the endless frustration, and the back and forth between emotions that are hard to describe. it's lonely but after he told me of the diagnosis we had a long talk and he told me he felt so much better about everything. there are things that i'm going to understand better than the rest of my family but this is also so foreign for me. my questions are does this treatment plan sound crazy or realistic? if you are a parent with cancer what are things your child has said or you wish they would say to help you in your fight? when do you wish they would just stay quiet and listen? i appreciate you taking the time to hear my fathers story and my concerns. any advice would be greatly appreciated. Tom Galli 1 Quote Link to comment Share on other sites More sharing options...
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