Zimbass Posted May 26, 2020 Share Posted May 26, 2020 Hi All, Michelle did contact me privately, as she was aware of my wife's Facebook post. I had a six week check up from starting the Targeted Therapy, and discovered that the Ceretinib had not worked for me, and the tumor had doubled in size. Have been put on a 3 week break to allow my liver to recover, as it had been severely compromised. Have been prescribed Lorlatinib as a new treatment, which I still have to find, as it is not available here in Zimbabwe, or South Africa. My pharmacist is looking to the UK for this. It has been such a blow to the confidence I had built up, especially from other ALK+ people on this forum. Not sure that a 5.2 cm tumor is any easier to shrink than the larger 10.7 cm one it has grown into to. Just think the treatment might just take longer than it would have. I am now on Morphine for the Bone Mets. It does not take the pain away, but does make me feel like I am better able to manage the pain. Not where I was hoping to be, but do know that everything happens for a reason. Just have to keep the faith. Best to you all. Terry. Tom Galli, G.A.M. and MBinOregon 3 Quote Link to comment Share on other sites More sharing options...
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