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Grower Elaine

Newly diagnosed stage 4 with pleural effusion

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Hello, my name is Elaine. I’m 52. On June 11, I went to the emergency room because I thought I was having a heart attack. I was not having a heart attack. The x ray showed that my IVC filter had broken apart. I also had a pleural effusion. The pleural effusion was drained and biopsied. They found a tumor on my right lung. I was diagnosed with Stage 4 Lung Cancer with Malignant Pleural Effusion. 
My cancer spread to my pleural space, and is inoperable. My PDL 1 is over 90%, so I started Keytruda  and hopefully I’ll respond positively. I have a PleuRX catheter in place. That was a shi_ show, because the tube is resting on nerves, because I’m thin. It’s quite painful. 
I’m disabled because I can’t walk, and now I can’t get around on my crutches, or use my wheelchair. 
I’m pretty much overwhelmed. 
Thanks for listening. Peace and positive vibes to all. 

 


 

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Hello Elaine,

Sorry you need to be here, but glad you found our forum.  I'm sorry to here about the discomfort you're going through.  My lung cancer resulted in a lobectomy last year and no chemo was recommended at that time, so I'm not able to provide any information about the type of therapy that you are undergoing, but there are many here who have seen all forms of therapy and I'm soon that they will get in touch with you soon.  

I can only tell you that there are folks here who were diagnosed at Stage 4 and went through many recurrences and are still here to talk about it.  So, please hang in there, never give up hope.  Therapies and procedures are changing at a rapid rate and for many LC can be treated as a chronic condition as opposed to the past.  You don't mention if you live alone or have family with you.  I hope the latter and that you have a support group.  If you didn't before, you do now.  The people here are wonderful and so many can answer any questions you may have from experience.  So please stay positive and take care of yourself as you go through this difficult journey.  

Lou

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Hi Elaine, I concur with Lou in everything he says in his excellent reply. Like hi, I had a lobectomy and needed no further  treatment so far.. I do hope that folks here who've had more advanced cancers will reply to you. Let us know how we can support you.

Bridget O

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 Thank you LouT and BridgetO. This has just been a whirlwind. June 11, I was me, after that, it’s been me with cancer. It’s not been an easy adjustment.
  I do have my sister, and she is a God send! The kids are grown, and are also amazing. I’m very lucky. My husband can be difficult, but that’s our dynamic, and he’s doing the best he can. I’m the glue that has held the family together, so we are all scrambling.                                           I’m trying to sort through the guilt and fear. I’m more afraid of letting my family down, than I am of the cancer. Guilt, seems to be the strongest emotion, thus far. 
I’m on a Keytruda study, and in a couple of weeks, I’ll be getting a chest ct to see if the tumor is shrinking. If it is, that means I’m responding positively to the Keytruda, and the pleural effusion would go away. Then I can get the chest tube out! That’s in a perfect world, but I live in this world, lol. So I believe my next infusion will be Keytruda and Chemo. Not sure what the name of the chemo is though. 
The Dr will go over all my tumor info next time I see him, so I’ll know more about that, soon. 
Thank you for listening.

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Hi Elaine: Sorry to see you here but you come to the right place. I was diagnosed with inoperable  lung cancer around the same time you were. This coming Thursday will be my second round of triplet  (Keytruda and 2 chemos). Needless to say I was devastated at first but after joining this forum I learned from the very caring and knowledgeable members that cancer is indeed beatable. I encourage you to read all the threads especially those written about chemo and Keytruda. You will find plenty of information to put you at ease. While treatment is not easy, there are plenty of new ways to cure cancer. I wish you the best.

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