Lin wilki Posted August 5, 2020 Share Posted August 5, 2020 I have had a right sided headache for over a week. Knowing one cancer warrior that also takes Kadcyla she found out she had brain Mets. Radiation took care of it but it sure got me thinking Thanks also to the great people on Lungevity Zoom they told me they get a brain MRI yearly. So I requested one. Did it yesterday and onc just called. CLEAR! So cT scan and follow up next week. Hope the good news continues! Link to comment Share on other sites More sharing options...
Rower Michelle Posted August 5, 2020 Share Posted August 5, 2020 Well that’s some good news! Looks like there were a bunch of us in machines....did my brain MRI today with Valium on board. Yowza how do people function on this stuff???? So happy for you Linda- you go girl! Link to comment Share on other sites More sharing options...
GaryG Posted August 6, 2020 Share Posted August 6, 2020 Congratulation on he good news. Hopefully more to come. Never give up hope. Link to comment Share on other sites More sharing options...
Tom Galli Posted August 6, 2020 Share Posted August 6, 2020 Oh I do love the sound of clean scans with coffee first thing in the morning! Stay the course. Tom Link to comment Share on other sites More sharing options...
LouT Posted August 6, 2020 Share Posted August 6, 2020 Lin wilki, That is the news we all like to hear around this place. Congratulations on the scans. Now go out and enjoy every day... Lou Link to comment Share on other sites More sharing options...
BridgetO Posted August 6, 2020 Share Posted August 6, 2020 Yes indeed! Yay for you and your clear scan. Bridget Link to comment Share on other sites More sharing options...
Lin wilki Posted August 12, 2020 Author Share Posted August 12, 2020 CT scan done. Onc was very pleased with results. Some tumors are dying. So new regimen for my HER2 - Kadcyla- is finally a treatment that is working Onc did say I need another echocardiogram. I had one before I started Kadcyla. Again she didn’t mention - my report says Coronary Artery Calcification Severe! Has changed over time from mild to moderate and now severe. Maybe I shouldn’t read those reports? They sound horrible I’m supposed to be celebrating my good scan so OK I’ll take it! Link to comment Share on other sites More sharing options...
Rower Michelle Posted August 12, 2020 Share Posted August 12, 2020 Awesome Lin! Finally the good news you’ve been waiting for! You know what to do, keep fighting. I stopped reading the CT reports about a year ago. There’s definitely some scary language in there that Google only makes worse. If the doc isn’t worried, I’m not gonna worry! Carry on! Link to comment Share on other sites More sharing options...
LexieCat Posted August 12, 2020 Share Posted August 12, 2020 Yeah, my CT reports always talk about the mild aortic aneurysm I have. Which sounds pretty darned alarming, yet no one seems concerned about it. Link to comment Share on other sites More sharing options...
Tom Galli Posted August 12, 2020 Share Posted August 12, 2020 Lin, Celebrate with gusto! I love the words "tumors are dying" in the morning! Stay the course. Tom Link to comment Share on other sites More sharing options...
Lin wilki Posted August 12, 2020 Author Share Posted August 12, 2020 I plan on it! Link to comment Share on other sites More sharing options...
LouT Posted August 12, 2020 Share Posted August 12, 2020 Great news and, for your information, I've stopped reading my reports as I always see something that takes away from the joy I should be feeling over the good news. I've often been told that my lungs are functioning much better in reality than my scans would have the doctors believe they would. So, I take that and run with it. You just keep moving forward. Lou Link to comment Share on other sites More sharing options...
Lin wilki Posted August 20, 2020 Author Share Posted August 20, 2020 So treatment was August 11 with good scans. I usually get a few days of fatigue the weekend after and then bounce back. This time, I cannot shake the fatigue! I nap every afternoon for an hour at minimum. I would like to think that it’s caused by my body fighting my cancer! I will certainly be mentioning this at my next appointment Link to comment Share on other sites More sharing options...
GaryG Posted August 21, 2020 Share Posted August 21, 2020 2 hours ago, Lin wilki said: So treatment was August 11 with good scans. I usually get a few days of fatigue the weekend after and then bounce back. This time, I cannot shake the fatigue! I nap every afternoon for an hour at minimum. I would like to think that it’s caused by my body fighting my cancer! I will certainly be mentioning this at my next appointment After my first treatment with the triplet, I could not buy one hour of sleep for 2 or 3 days. I was so wired up from drinking boost and eating sweets I felt I could be combustible. My oncologist gave me medication to help me eat. Since then I returned to consuming regular food, gained weight and was able to get a good night sleep. I feel I could also sleep during the day if I wanted to but that's my choice. Link to comment Share on other sites More sharing options...
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