Starting chemo/immunotherapy today!

[Babs]

I hope everybody’s side effects are manageable.  Mine were horrid this go round!  I had leg, bone pain from Sunday evening and still woke up from it at 2:00 am today.  This time my wrist even started hurtIng again where I broke it over Labor Day.  I don’t take the extra steroids after treatment as my Dr is not a fan.  Something needs to change for the next treatment.  Either a reduced dosage or introducing the steroids.  Any similar situations out there?  Has anybody reduced their dosage?  I am on Carbo/taxol/Keytruda ever 3 weeks.  Thanks...

Babs

[Sabacat]

So sorry to hear that, Babs!!!  My second round is on Monday - will lyk how that goes, but I do get the steroids so things will probably 🤞not hit the fan till Thursday.

Susan  

[Sabacat]

My worst days last time (after Monday infusion) were Saturday through probably Tuesday.  Hard to be sure because the reaction to the compazine accounted for a large part of the bad stuff and having it happen on the holiday weekend made it that much worse.  This past week was pretty good aside from some mild headaches. 

[GaryG]

Babs: Sorry to hear you are having a bad time. I had my 4rth infusion of Carbo/Alitba/Keytruda (Not Taxol) 2 days ago and I always take steroids one day before and 2 days after infusion. I did not notice any ill effects . I even think I have better appetite taking them.  I will say though that  this time around I am feeling less energetic and a bit sleepy. I hope things do not get worse going forward. Maybe that's why they limit Carbo to 4 times. 

Best

GaryG

[JamesB]

34 minutes ago, GaryG said:

Babs: Sorry to hear you are having a bad time. I had my 4rth infusion of Carbo/Alitba/Keytruda (Not Taxol) 2 days ago and I always take steroids one day before and 2 days after infusion. I did not notice any ill effects . I even think I have better appetite taking them.  I will say though that  this time around I am feeling less energetic and a bit sleepy. I hope things do not get worse going forward. Maybe that's why they limit Carbo to 4 times. 

Best

GaryG

Hey Babs, maybe that's why we are having a tough time.Gary I'm on the same protocol. I only got steroids day 1 and day 2 maybe 3 days is better? Or at least a better taper plan.I have been on them many times for my ears.

[GaryG]

Hi James. My oncologist put me on 4 days of steroid. I take 2 at home the day prior to infusion. I am given 2 before infusion.  I take 2 each day  2 days after infusion

[JamesB]

3 hours ago, GaryG said:

Hi James. My oncologist put me on 4 days of steroid. I take 2 at home the day prior to infusion. I am given 2 before infusion.  I take 2 each day  2 days after infusion

That sounds like a plan! I'm going to ask my doc about this. I had 20 mg the day of the infusion and then 8mg the day after. That's probably why I felt so good.

Thanks so much for the info.

James

[Babs]

6 hours ago, JamesB said:

Hey Babs, maybe that's why we are having a tough time.Gary I'm on the same protocol. I only got steroids day 1 and day 2 maybe 3 days is better? Or at least a better taper plan.I have been on them many times for my ears.

So James, we are on the same drugs sounds like.  Carbo/Taxol/Keytruda.  I always thought it was the Taxol which is the nasty one.  Are you doing treatment every week?  I have 20 mg steroids the day of infusion and then nothing.  I wonder if I were to have steroids after the infusion it would just prolong the onset of side effects or actually lessen the severity.  What steroid drug is everybody on?  I take Dexamethasone on infusion day.  All I know is something has to be different for next treatment. 
 

Babs