Deb W Posted October 17, 2020 Share Posted October 17, 2020 Hi everyone, This is long so please bear with me. I had some great news at my 9-week follow-up scan on Tuesday. After my last infusion visit I mentioned that the oncologist used the word clear, and I wondered if that term meant the same thing as NED. On Tuesday the oncologist said that I am in remission and have been since August. Since my recurrence this past April when I was staged at IV, he reminded that there is no guarantee that micro metastasis won’t occur again and there is no way to know. He said that perhaps he is over medicating me, but the goal is to eradicate any invisible cancer cells. Even with the fabulous news of “remission” it was a very upsetting appointment due to the following incident. I had asked my oncologist if it would be possible to write a sentence or two in the portal before releasing the radiologist’s report on the scan. Sometimes we get these reports by the radiologist and it can be a real challenge to understand them and sometimes they sound more serious than they really are. He became so irritated with me and said I can’t do that….do you know how much time that would take - if the hospital made me do that I’d quit. You want me to write some bullsh** about the scan. That’s not my job - that is the radiologist’s job. He asked if that had been done at the other system I was in and I said yes, it was…which infuriated him even more. I was uncomfortable, and he calmed himself down, but I still don’t feel right about this now. I work in the mental health field, and I would never speak to a client/patient the way he spoke to me. Yet, I know he is the scientist and he’s up on all the latest literature - I trust that part. I just don’t feel the same way about this guy. I probably have the option to see someone else in this practice. I am at a comprehensive cancer clinic, so I wouldn’t want to leave, but I think maybe I should switch oncologists. Would you be willing to share some of your experiences with your oncologists? Tom Galli 1 Quote Link to comment Share on other sites More sharing options...
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