Saturn_Bound Posted November 21, 2020 Share Posted November 21, 2020 Hi everyone. My mom started Keytruda a couple weeks ago, before that, she progressed from 3b to stage 4 after four rounds of chemo. Initially she was at stable disease (during chemo) but after the last PET from 2 weeks ago they found solitary met in liver. We saw the lung specialist same week pet scan results came back and he said there was not enough fluid to drain. 2 weeks later and my moms SOB was so severe she could hardly walk, even sitting and resting was painful and caused her problems. I emailed the one on Monday, no response. We followed up on Thursday morning via mychart and asked if just in case we could drain her lungs, he said okay and we took her in yesterday morning. Turns out, A LITER AND A HALF of fluid was drained from her lungs!!!!!!! how could they have missed this? I swear she is a different person now. She can sleep, she can eat, she can laugh, she can smile. My sister and I are angry as it seems almost neglectful of the Onc team to not suggest we drain sooner!!!!!! now we are paranoid the malignant pleural effusion could exacerbate the cancer further and spread the cancer more easily. I also read devastating stats that malignant pleural effusion has even more poor prognosis than just lung cancer alone. The lung specialist said eventually she might need a catheter to keep the fluid drained. Can she get better from this? Is MPE as scary as it sounds? LouT 1 Quote Link to comment Share on other sites More sharing options...
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.