catlady91 Posted November 30, 2020 Share Posted November 30, 2020 My mum developed radiation pneumonitis quite badly a few weeks ago and was treated with steroids which she recently stopped taking. She still feels breathless sometimes but is much better. I'm very worried as at her last visit with the consultant he said that she had pulmonary fibrosis (scarring of the lungs). He didn't elaborate about it or say much about it. He said that it's normal that my mum has these problems as she was given such a high dose of radiation. I've read about pulmonary fibrosis and it's a very serious condition. Idiopathic pulmonary fibrosis has a life expectancy of 3-5 years. I don't know if idiopathic (unknown cause) pulmonary fibrosis has a different outlook to pulmonary fibrosis. I'm scared that it will shorten my mum's lifespan and that she'll have chronic problems and she's still not a hundred percent better. She want for a short walk today but didn't have breathlessness, only hip pain. Has anyone else experienced this. My mum was told that she would have scarring from radiation but I'm scared that it's severe. Quote Link to comment Share on other sites More sharing options...
TJM Posted December 2, 2020 Share Posted December 2, 2020 Cat lady, I cant be of much help to you. I have a rare form of Lung Cancer as well but I find this forum very helpful regardless. Only question I have is was she getting radiation for lung cancer? Welcome, and I hope you get some answers Peace Tom Quote Link to comment Share on other sites More sharing options...
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