TJM Posted July 28, 2021 Share Posted July 28, 2021 Hey all. My new strategy is still working wonders for the pain. Still trying to get script upsized a bit. My wife is going to call my onc to explain the vast difference. But the biggest update I have is I am now 1/2 owner of a smallish pub. It's on a River and an awesome location. Spent the last couple of days painting. Man.. I am out of shape! In a bit of pain today but it's the good kind. Tiny muscles that haven't been used much in 18 months! But it's a good pain! Swing by sometime. Lungevity.org members get a free beer and lunch! Peace Tom Julia g, LouT, Judy M2 and 1 other 4 Quote Link to comment Share on other sites More sharing options...
AleHondaa Posted July 28, 2021 Author Share Posted July 28, 2021 @GawaMark It’s most definitely a mental battle and I still have my days against this awful disease. But you can’t let it get to you because when you do that’s when it starts to win and that can’t happen. LouT and Judy M2 2 Quote Link to comment Share on other sites More sharing options...
Rower Michelle Posted July 29, 2021 Share Posted July 29, 2021 Ale, It's nice to hear that your spirits have been lifted out of the basement... we all know it's one day at a time and you're doing such a great job of plowing through...I think of you often and we're all rooting for you.... LouT and AleHondaa 2 Quote Link to comment Share on other sites More sharing options...
TJM Posted July 29, 2021 Share Posted July 29, 2021 On 7/28/2021 at 12:55 PM, TJM said: Hey all. My new strategy is still working wonders for the pain. Still trying to get script upsized a bit. My wife is going to call my onc to explain the vast difference. But the biggest update I have is I am now 1/2 owner of a smallish pub. It's on a River and an awesome location. Spent the last couple of days painting. Man.. I am out of shape! In a bit of pain today but it's the good kind. Tiny muscles that haven't been used much in 18 months! But it's a good pain! Swing by sometime. Lungevity.org members get a free beer and lunch! Peace Tom I put this in the wrong string. Is there a way to move it? Sorry Ale...not trying to co-opt your story. LouT and AleHondaa 2 Quote Link to comment Share on other sites More sharing options...
LouT Posted July 29, 2021 Share Posted July 29, 2021 1 hour ago, TJM said: I put this in the wrong string. Is there a way to move it? Sorry Ale...not trying to co-opt your story. Tom, Let it go...unless you want me to delete it... Lou TJM 1 Quote Link to comment Share on other sites More sharing options...
AleHondaa Posted August 1, 2021 Author Share Posted August 1, 2021 No It’s okay @TJM you can leave it here it’s just a mistake. TJM 1 Quote Link to comment Share on other sites More sharing options...
AleHondaa Posted August 1, 2021 Author Share Posted August 1, 2021 Update time! Just got my 3rd infusion of enhertu on Friday and I’ve been feeling great. One thing I’ve noticed is after a couple of days after infusion I get some fatigue and nausea but only for a couple days. I have one more infusion before my scans which let’s hope for some good news because I’m in need of it. I don’t like being left in the dark for so long but it’s part of it unfortunately. I actually found out some news of my previous treatment. It was actually a mixed response but the bad outweighed the good and I believe my doctor didn’t tell me not to get my hopes up. The good portion of it was that there was some shrinkage of the main nodule in my lung, but the bad was all the spots that emerged. So hopefully this new drug (which was recently just approved and I’m the first patient my doctor has given it too works). I’ll post updates when I got some more stuff for y’all. Thanks for being around like always and I hope things are going in your favor for everyone ❤️ LexieCat, LouT and TJM 3 Quote Link to comment Share on other sites More sharing options...
Judy M2 Posted August 1, 2021 Share Posted August 1, 2021 Fingers crossed for you, Ale. We are all pulling for you. Tom Galli and AleHondaa 2 Quote Link to comment Share on other sites More sharing options...
Rower Michelle Posted August 2, 2021 Share Posted August 2, 2021 We’ll keep Praying for you Ale! Hang in there…. We love you! AleHondaa 1 Quote Link to comment Share on other sites More sharing options...
LouT Posted August 3, 2021 Share Posted August 3, 2021 Hang on Ale, Prayers and thoughts going out for you. Lou Quote Link to comment Share on other sites More sharing options...
AleHondaa Posted August 20, 2021 Author Share Posted August 20, 2021 Hey all! Update for everyone, today I’ll be getting my fourth dose of enhertu. After this dose I’ll be due for more pictures to see how everything is going. Hopefully I’m due for some good news like I’m been hoping for and continue this treatment. Lately I’ve been pretty fatigued and nauseous so lying down has been my remedy most of the time. I’ll update you guys with results once I get them, fingers crossed 🤞🏼 LouT, LexieCat, Judy M2 and 3 others 6 Quote Link to comment Share on other sites More sharing options...
Rower Michelle Posted August 20, 2021 Share Posted August 20, 2021 Hi Ale, Given what you’ve been through over the last few months, you are being a real trooper through the chemo. Tell your doc about the nausea & fatigue to see if there is something to change up the meds they are giving you. Maybe a tweak will help? Always good to hear from you- hang in there as best you can… we’re all rooting for you. Tom Galli and AleHondaa 2 Quote Link to comment Share on other sites More sharing options...
LouT Posted August 21, 2021 Share Posted August 21, 2021 Ale, Michelle is right about speaking with your doctor. From these forums, I've learned that you have to speak up if you have symptoms so they can be relieved. I can't wait to hear about your scans and am praying for a good outcome. Lou AleHondaa 1 Quote Link to comment Share on other sites More sharing options...
AleHondaa Posted September 7, 2021 Author Share Posted September 7, 2021 Hey yall, today is my scan so I’m pretty nervous. Wish me luck 🤞🏼😬 LexieCat, Rower Michelle and ChiMama 3 Quote Link to comment Share on other sites More sharing options...
Rower Michelle Posted September 7, 2021 Share Posted September 7, 2021 Ale- you and whole lot of our peeps are up for scans today… Let’s hope for some good news, you’ve been through so much…. AleHondaa and LouT 2 Quote Link to comment Share on other sites More sharing options...
LUNGevityKristin Posted September 7, 2021 Share Posted September 7, 2021 Sending you lots of good thoughts!!! LouT and AleHondaa 2 Quote Link to comment Share on other sites More sharing options...
LexieCat Posted September 7, 2021 Share Posted September 7, 2021 Good luck!!!! Waiting to have my scan now. LouT, AleHondaa and Tom Galli 3 Quote Link to comment Share on other sites More sharing options...
Judy M2 Posted September 7, 2021 Share Posted September 7, 2021 Good luck to Ale, Lexie and everyone having scans! AleHondaa, Tom Galli and LouT 3 Quote Link to comment Share on other sites More sharing options...
LouT Posted September 8, 2021 Share Posted September 8, 2021 All digits crossed...I'll be waiting to celebrate good news. Lou AleHondaa 1 Quote Link to comment Share on other sites More sharing options...
TJM Posted September 9, 2021 Share Posted September 9, 2021 Best of luck on scans. I'm one of those who also got scanned yesterday. You've heard of group think? This is group wait! Peace Tom AleHondaa, LouT and Rower Michelle 3 Quote Link to comment Share on other sites More sharing options...
Good Bro Posted September 9, 2021 Share Posted September 9, 2021 Good luck Ale! My brother didn't have scans but did receive his 4th treatment of the Triplet yesterday. His next rescan is set for the 22nd. LouT, AleHondaa and TJM 3 Quote Link to comment Share on other sites More sharing options...
AleHondaa Posted September 10, 2021 Author Share Posted September 10, 2021 I got my scans guys and it’s very good news! So the treatment is definitely working, no new growth and there has been Shrinkage of the main nodule. As well, it seems that my bones have been healing as well. It’s over all very good news and I knew I was due for it. Hopefully everyone that got their scans also received good news as well. LUNGevityKristin 1 Quote Link to comment Share on other sites More sharing options...
LexieCat Posted September 10, 2021 Share Posted September 10, 2021 Oh, Ale, I am SO happy for y9u. If anyone was due for good news, it's you. That's simply awesome. My scan was less than awesome, though not dire. Got an odd cloudy area the radiologist thought was disease progression; doc disagrees and thinks it looks pneumonia-ish. Got more antibiotics (to go with the ones I'm already taking) and another scan in a month. Hopefully that one will be closer to awesome. Weird thing is I have no symptoms--OTOH, I'm feeling great. Doesn't it feel good to know all the medical stuff we're going through is paying off? AleHondaa 1 Quote Link to comment Share on other sites More sharing options...
LUNGevityKristin Posted September 10, 2021 Share Posted September 10, 2021 What great news!!!! AleHondaa 1 Quote Link to comment Share on other sites More sharing options...
Rower Michelle Posted September 10, 2021 Share Posted September 10, 2021 Finally! You got some well deserved good news…. So happy for you! AleHondaa 1 Quote Link to comment Share on other sites More sharing options...
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