Rower Michelle Posted April 28, 2021 Posted April 28, 2021 It's my turn to chime in today. Yesterday I had my scans and similar to @RonH experience, the results were posted shortly after I got home. I have to say I was surprised but then I remembered @MBinOregon said something about a new Federal rule about releasing medical results to the patient portal as soon as they were made available. I was nervous. I asked hubby, should we look or wait? We looked. Virtually the same report as last time, NED. There are two radiologists who typically read my scans, one says Stable, the other typically says no new evidence of metastatic disease. As far as my oncologist is concerned, other than some scarring from where the tumor was, my lungs look essentially normal. I have been on targeted therapy for 30 months. While we have no idea how long much longer this ride will continue, there is no predictor so for now we carry on, until the next set of scans in three months. I'm so grateful for this community, even though I've been a little MIA, I still read the posts and keep up with everyone. Michelle
Tom Galli Posted April 28, 2021 Posted April 28, 2021 Michelle! How about THAT! Michelle is NED. Indeed worthy of a grand celebration. Stay the course. Tom
Jesse L. Posted April 28, 2021 Posted April 28, 2021 Let me chime in here and say congratulations on the fantastic news. NED is the bullseye, the target we're all aiming for!! Stay in touch as we support each other no matter what!!😆😆😆
Rower Michelle Posted April 28, 2021 Author Posted April 28, 2021 Jesse- thank you for the kind note. You’re an awesome addition to our family here!
TJM Posted April 28, 2021 Posted April 28, 2021 I am so happy for you Rower! And yes, it is a new regulation and I love it!
Judy M2 Posted April 28, 2021 Posted April 28, 2021 And congratulations to Michelle! The only results posted so far from yesterday's scan and blood work is my CEA level, which is at an all-time low of 1.8! So I'm going to expect a good report too, next Tuesday.
Rower Michelle Posted April 28, 2021 Author Posted April 28, 2021 Thanks Judy- we all seem to be on the same schedule. Good luck with those scans next week!
Susan Cornett Posted April 30, 2021 Posted April 30, 2021 Congratulations, Michelle! That's wonderful news.
Deb W Posted May 3, 2021 Posted May 3, 2021 Michelle, That is fantastic! I'm so happy for you. Happy rowing this summer! Deb
Claudia Posted May 3, 2021 Posted May 3, 2021 Congratulations Michelle! I’m so happy for you. NED is the best we can hope for. Keep going. I am. I hope we both stay NED forever. Peace, light and great scans to all. Claudia
LouT Posted May 23, 2021 Posted May 23, 2021 Michelle, I was off the boards for a few weeks and am just now catching up. Your scan news is music to my ears. So glad to hear that it was a great results. I look forward to many more "Stable", "NED"scans for you. Lou
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