Rurumc Posted May 14, 2021 Share Posted May 14, 2021 Hi, everyone! I was diagnosed with NSCLC w mets to skeletal system in July 2020. Had 4 sessions of Carbo/Alimta/Keytruda. Have been on Keytruda only since Nov. 2020. I am feeling good, in stable condition according to my oncologist. My biomarker testing revealed I have the Her+2 mutation w a PDL1 protein>80% which makes me a good candidate for immunotherapy. Had a scan Monday two weeks ago that scared me. It showed inflammation of my tumor and lymph node. Oncologist is a lousy communicator and I was stressed and depressed for a solid week until I went in Tuesday for an infusion. He told me my Covid vaccine had caused the inflammation. I told him he could have told me that. I asked him to be more approachable and available to talk to and he said he had a system and wasn't changing it. He knew I was very unhappy when I left his office. He spoke to the practice manager about me and she called on Wednesday. The gist of which I am uncertain. He got huffy when I went to Duke in Dec 2020 for a second opinion. When I couldn't get answers out of him last week I reached out to Duke again and they set me up with an appointment and ordered MRI and Pet scan. The practice manager said he has an issue with the 2 doc scenario. The hospital here in town has been working with me to pay for treatment so I don't know if Duke can do the same unless they are non-profit. I will be 62 in June. I lost my youngest sister, 54, unexpectedly three weeks ago. The stress of all these issues is hard to distance myself from. I'm having a hard time finding simple pleasures and I'm embarrassed to admit it. I am also adding stress to the life of my remaining sister and niece(s) and need to lighten up so they will quit worrying about me. Thanks for letting me rant! Quote Link to comment Share on other sites More sharing options...
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