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Extreme pain opiates with pneumonectomy help


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Hello to All, happy 3 day weekend.  I am a lung cancer survivor and currently looking for some advise. I had my left lung removed due to neuroendocrine cancer. It’s been a battle. I have been on morphine after surgery and have dealt with excruciating pain,

I am on a high amount of morphine (600mg) which helps some, but the pain is getting worse, im looking for opinions/assistance. I’ve tried exercising with no benefits, the pain is so bad that I can barely function, it’s tough to get out of bed. Any advise is appreciated.

Thank you in advance, happy memorial weekend.

 

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Hi there, and welcome. I'm so sorry you're having so much pain. How long ago was your surgery? If you haven't already done so, you might want to consult with a palliative care doctor--they are experts at relieving pain associated with cancer or its treatment.

I was fortunate--I had a lobectomy via VATS, so I had very little pain from surgery. I know we have a few members here, though, who had more extensive surgery and had to deal with a lot more pain. I expect they will be along shortly and might have some suggestions.

Hope you are able to get some relief.

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If I may ask. What is the most powerful dose of each drug yo ou have taken.

You did not mention two obvious ones tho

 

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I would recommend seeking out a board certified pain management physician given the dose and duration of the MS Contin, where they can evaluate an alternate treatment plan- the body’s pain receptors have to be literally re-wired.  This is very doable with the right pain management team.  

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My palliative care doctor prescribed methadone for my esophagitis pain. It worked pretty well, but she had to switch me to a Fentanyl patch when I started a targeted therapy. I recommend seeing a palliative care doctor or a pain management doctor. At the time of my pain, I also saw an integrative medicine doctor who recommended natural/herbal products and performed acupuncture. This can also help with relaxation and improving your state of mind. 

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You've gotten some great counsel from our family here and I hope you are able to connect with palliative medical support so you don't have to suffer like you've been doing.  Please keep us updated after you speak with your doctors.

Lou

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Hi and welcome. I'm sorry to hear about your  long-term pain. I can understand how it would be debilitating and depressing. I don't have anything to add to Michele's and LexieCat's suggestions of a palliative care or pain management specialist.  Those sound right on. Let us know how things are going.

Bridget O

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Hi,  So sorry to hear a about your chronic pain! I can only imagine how debilitating this must be!  Prayers are with you!  I to am a New Be or it has been awhile since  I have been very active.  Hoping you find help and at the very least support from this group.

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