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Malignant Glomus Tumor


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I'm pretty sure that's not what's considered lung cancer, though there are rare instances when it appears in the lung.

I looked over your early posts and noted you said his biopsy showed "malignant focal spindle cell of lung." I had to look that up, too, as it's very rare. Maybe that's why the consult with Mayo clinic. 

Where did you read/hear about "glomus tumor"? Has someone diagnosed him with that?

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Initially the hospital biopsy results said Focal spindle and when they sent out the biopsy sample to Mayo Clinic for second opinion, Mayo Clinic came up with Malignant Glomus Tumor. His chest X-ray showed 10cm mass along with a scrotal mass. He also has some nodules on the scalp. It has mostly affected his left lung and has now affected his right lung in the matter of 2 weeks. 

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I'm not sure how helpful we can be in terms of his treatment--I've never run across anyone on these forums with a glomus tumor--as I said, I don't think it's technically lung cancer, even though he has a mass there. I think you're going to have to talk to the oncologist about it. 

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Hi LexieCat, 

I have attached the Mayo Clinic report. We are looking for some guidance from this group. We are thinking about getting a 2nd opinion on this. 
We need recommendations for any prestigious hospitals or cancer centers who would treat Glomus Tumor. 


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We really can't make recommendations, and I doubt anyone here has any knowledge or experience with treatment for this particular type of cancer.

I'd suggest contacting the National Cancer Institute--they might be able to point you in the right direction: https://www.cancer.gov/contact

Incidentally, I'd crop that photo if I were you--it has your dad's personal info on it.

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