Jennedy Posted July 8, 2021 Share Posted July 8, 2021 Today was supposed to be the 3rd round of Taxotere & Cyramza. Because of brain radiation, it was just a Zometa infusion and talk with Oncologist and Palliative care. The recommendation was not to continue on the Taxotere because it is too hard on my body and I have new brain mets. The right side of my body has improved, but the left has gotten worse. So mixed results. I did get get the results from the liquid biopsy... EGFR and still NSCLC. My oncologist says they didn't work before so they probably won't now. Lots of discussions about enjoying the time I have left, quality of life, future of hospice. Am I wrong to not be ready to give up? My gut is to call the 2nd opinion from OSU, get a tissue biopsy and switch. I can't let convenience determine my life span. Link to comment Share on other sites More sharing options...
LUNGevityKristin Posted July 8, 2021 Share Posted July 8, 2021 Are you on Facebook? If so, we have a pretty large EGFR specific group that is active. It might be a good place to ask some questions and get EGFR specific feedback. https://www.facebook.com/groups/EGFRlung/ Link to comment Share on other sites More sharing options...
LUNGevityKristin Posted July 8, 2021 Share Posted July 8, 2021 Follow up to that, have you been on Tagrisso? Link to comment Share on other sites More sharing options...
Jennedy Posted July 8, 2021 Author Share Posted July 8, 2021 Yes, I was on Tagrisso. I ended up with pneumonitis and they took me off it. When they put me back on it, it didn't work. Link to comment Share on other sites More sharing options...
Rower Michelle Posted July 8, 2021 Share Posted July 8, 2021 Hi Jenny, Follow your gut on this one, there’s no harm in exploring a second opinion to determine if there is a potential clinical trial available to you. Best to make an informed decision about continuing treatment. In my mind, it’s not about giving up- like you I’d want the best quality of life for me and my family. There may come a time for all of us where the treatment is worse than the disease then hospice becomes the courageous decision. The second opinion seems like a perfectly reasonable option. Go for it. Michelle Link to comment Share on other sites More sharing options...
Babs Posted July 9, 2021 Share Posted July 9, 2021 Jennedy, I would absolutely go for the 2nd opinion and NO, it’s not OK to give up if you’re even asking that question. That’s my opinion anyway. I’m rooting for you and please let us know how you’re doing. Babs Link to comment Share on other sites More sharing options...
LouT Posted July 9, 2021 Share Posted July 9, 2021 Jennedy, You can put me squarely in the "2nd Opinion" camp. There is never anything to lose to have other eyes on the situation. Once you're satisfied that you've gotten all the data you can and you trust its (the data) validity then you can make any decision you feel is best for you and your family. I'm with Michelle on this. Any of us can face this and, while I try not to dwell on it, I've often had to think through what I might do based on prognosis. We don't ever give up...we decide what is best for us and those we love. Lou Link to comment Share on other sites More sharing options...
Susan Cornett Posted July 10, 2021 Share Posted July 10, 2021 I'm also voting for the second opinion. If that doesn't work out, go for a third. You call the shots. Link to comment Share on other sites More sharing options...
LexieCat Posted July 10, 2021 Share Posted July 10, 2021 Ditto here. Hey, I'm the queen of swinging for the fences, ya know? I'm so glad I did the trial I did rather than just going with a next line of treatment (which probably would have been some other stronger variety of chemo). I always say one of the keys to surviving lung cancer is to find ways to keep yourself alive till the next great discovery/treatment. And by doing clinical trials, you get first crack at those opportunities. We're all different in what we can/are willing to tolerate, but you don't sound NEARLY ready to stop treatment, so I'd keep on with the Quest if I were you. Link to comment Share on other sites More sharing options...
Jennedy Posted July 10, 2021 Author Share Posted July 10, 2021 OSU opens Monday at 8 AM. I'll give them 15 minutes to get coffee, then I'm on the phone. Link to comment Share on other sites More sharing options...
Rower Michelle Posted July 10, 2021 Share Posted July 10, 2021 Waiting is not a word in my vocabulary. Call ‘em at 8:00am….. most of the medical team is in about 7:30 for the pre clinic staff meeting. Go for it Jenny! Link to comment Share on other sites More sharing options...
LouT Posted July 11, 2021 Share Posted July 11, 2021 Jennedy, What Michelle said!!! Lou Link to comment Share on other sites More sharing options...
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