unknown00 Posted August 30, 2021 Share Posted August 30, 2021 Hi there, As I said in another topic, my dad has NSCLC adenocarcinoma. 3-4 months ago when he was first diagnosed he was relatively "Well". He was active, doing everyday stuff. He only had cough and he ran out of breath easily. One of the biomarkers during testing came out high so he was given the option of immunotherapy (Keytruda). 3 months later, tests revealed that not only his lung got much worsen but there was a strong indication of brain metastasis. Long story short, now he started Pemetrexed + Carboplatin chemo and he has brain metastasis with edema. He can barely move and he is very very weak, lost so much weight. When I initially joined this forum I got hope through the various posts I read by people who gave their honest feedback and who really wanted to help. Unfortunately as the time goes by (very quickly..) I am facing the harsh reality. I lost hope and I don't how this can turn around in any way. His health declined extremely rapidly, I wasn't expecting that. Not only that, I had in mind that he would do his treatment and just deal with some side effects. Unfortunately every single day there is something new, something bad, something unexpected that is dragging us down. Sorry for the sad and pessimistic tone of my message but that's how I feel. Another subject I would like to touch is "protocols". They keep mentioning that they're following protocols, and they do. However I feel like "protocols" are vary general and for sure, even statistically, will provide bad treatments to patients that will eventually cost their life. I don't blame the doctors or the "system" but it's something that I've been thinking about lately. They don't really study each case individually even though they claim that they have a board of doctors. Yes there is a board, but what do they actually do? For the most part they follow the bibliography blindly. Anyway.. Thanks for your time and may you have a great day Quote Link to comment Share on other sites More sharing options...
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