DMaddox Posted September 3, 2021 Share Posted September 3, 2021 Hi y'all. I have lurked but hadn't posted yet. All your information has been so helpful to me already. A little back story - in April, I was working in my garden, lifted a bag of mulch and my right arm snapped in two. ER doc said broken right humerus and put me in a sling. Saw the ortho doc who said there was more to the story. The entire cortex off the back of the bone was gone. He said this was a pathologic fracture, probably cancer. I had no insurance (stupid U.S.A.) so a GoFundMe was set up by my kids to get me into a doctor to find out what was going on. Long story short and lots and lots of tests you all have had too, it was stage IV lung mets to bone (1.2 cm nodule in left lobe). Cancer center got me set up with ACA with GoFundMe funds funding my portion. Got a rod in my arm 7 weeks after breaking it, did radiation to the arm, and started chemo (Keytruda/Alimta/carbo) in June. All has been going relatively well. Doc said 4 treatments of the 3-drug therapy then re-PET scan to see where we are and 2 more years of maintenance therapy with Keytruda/Alimta. (Genetic testing was done on my biopsies and I had no identifiable markers). I just finished treatment #4 and was having my usual horrible lower intestinal problems with the side effects but also thought I might have a UTI. Stopped in to the local urgent care to see if indeed I had a UTI, and doc decided I had an acute abdomen and did a CT scan w/ and w/out. Technician came in and said radiologist saw something in my lower lung he didn't like and they would be doing a CT scan w/ and w/out of my chest too. Turns out - 3 pulmonary emboli, two in each base and one in the right upper. I had no "symptoms" per se. I mean, doesn't lung cancer cause one to be short of breath sometimes? I was, unfortunately, a long-term smoker so perhaps I don't notice shortness of breath like others might and I work a very sedentary job. My question for you is this - I'm told cancer and chemo both can cause PEs. Have any of you dealt with that? They wanted to admit me to the hospital, which I flatly refused. I mean, I came in there for a UTI, which I did indeed have. They gave me Lovenox. I got Lovenox the next day at the cancer center and now I'm on Xarelto. I forgot to ask the doc, since I will be doing maintenance chemo for 2 years, if I will have to stay on this thromboembolic most likely the entire time. I'm guessing I will. Have any of you experienced this? I will say this, the one thing that did not show up on the chest CT w/ and w/out of the chest was the 1.2 cm cancer nodule that started this entire thing in motion. My oncologist noticed that too. My PET CT is scheduled for 9/7/21 so I'll know next Tuesday if it still lights up or not and if the cancer is gone in my right arm. They are telling me not to worry about the PEs and that they are common in cancer patients. Take my medicine and seek attention immediately for severe shortness of breath. Just wondering if others have dealt with the same kind of thing. Quote Link to comment Share on other sites More sharing options...
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