GingerSnap Posted October 29, 2021 Share Posted October 29, 2021 I am looking to read about folks who have been on Tagrisso for a while to see how life will look going forward. Link to comment Share on other sites More sharing options...
LouT Posted October 29, 2021 Share Posted October 29, 2021 Hi Ginger, I see you found this one on your own. That's great! I'll be around if you need me. Lou Link to comment Share on other sites More sharing options...
Lisa Haines Posted October 30, 2021 Share Posted October 30, 2021 Hi Ginger, Great to see you here and in the Virtual Meet up group! PS: I'm not an EGRF patient, but I know many and would suggest you also join LUNGevity's EGFR Group on FB, if you are not a member, and also to th e https://www.facebook.com/groups/EGFRlung EGFR Resistors https://www.facebook.com/groups/EGFRResisters -- Many of the LUNGevity members with EGRF are quite active in these groups! Lisa Link to comment Share on other sites More sharing options...
GingerSnap Posted October 30, 2021 Author Share Posted October 30, 2021 Thank you, Lisa! Take care! Link to comment Share on other sites More sharing options...
GingerSnap Posted October 30, 2021 Author Share Posted October 30, 2021 Hi, Lou!! Link to comment Share on other sites More sharing options...
Judy M2 Posted October 30, 2021 Share Posted October 30, 2021 As I mentioned in your introductory post, I've been on Tagrisso since March 2020, after chemo and radiation. My side effects come and go but have been manageable. About 8 months in, I developed a dry cough which turned out to be Tagrisso-caused nasal allergies, so I take Claritin daily. My eyes are dry, so I use lubricating drops. In August, I developed a case of itchy eczema, and my dermatologist gave me a topical steroid which worked great. I do have to moisturize well. And my nails are a sad wreck no matter what I do. I've recently been more short of breath (another common side effect), and my pulmonologist has prescribed a different inhaler (Advair), which my pharmacy is having a hard time filling. Apparently supply chain problems. Some people have other side effects, diarrhea being most common. Fatigue, loss of appetite, changes in taste, ingrown toenails and hair loss are also possible. But everyone is different, so don't assume you'll get all of them. Thanks to all of the treatments I've had and Tagrisso, I am NED today and you'd never know I had any disease. In fact, I told my pulmonologist this week that if he had told me 2 years ago that I'd be in good health again, I wouldn't have believed him. I walk my dog for an hour every morning, clean my own house, do laundry and cook meals. Luckily I'm retired but I could work if I were younger (my last job was remote before it became fashionable). Bottom line is that your scans will hopefully show steady improvements and you can regain most if not all of the life you had before diagnosis. Link to comment Share on other sites More sharing options...
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