G.A.M. Posted November 12, 2021 Share Posted November 12, 2021 I had a four month checkup with my oncologist yesterday. This visit was with a simple chest X-ray. Still No Evidence of Disease. My next appointment is in four months with a CT Scan. My huge appreciation to you all for the answers to some really tough questions. My weight through all this was a drop from #235 to #150. I can't say why. It might be all the healthy meals we make coupled to a waning appetite. My brother who is suffering from NSCLC, is down from #145 to #113. He is on immunotherapy treatments. I'm really worried about him. He lives in AK and I haven't been able to fly up there because the their strident rules throughout the pandemic. I hope they get it smoothed out in 2022. Best, Glenn Link to comment Share on other sites More sharing options...
LexieCat Posted November 12, 2021 Share Posted November 12, 2021 Congrats, Glenn--wonderful news! I'm sorry your brother is having a rough time of it. Tell him the Lungevity crew are all pulling for him. Link to comment Share on other sites More sharing options...
G.A.M. Posted November 12, 2021 Author Share Posted November 12, 2021 I'll pass that along, @LexieCat Best, Glenn Link to comment Share on other sites More sharing options...
BridgetO Posted November 12, 2021 Share Posted November 12, 2021 Yay for you, Glenn! And all the best to your brother with his immunotherapy. Link to comment Share on other sites More sharing options...
LouT Posted November 13, 2021 Share Posted November 13, 2021 Glenn, This is great news and I pray it keeps up this way for you. Sorry to hear about your brother, but hopefully he'll respond to treatment as well as you have. Lou Link to comment Share on other sites More sharing options...
Tom Galli Posted November 13, 2021 Share Posted November 13, 2021 Glenn, Wow...NED, simply wonderful news! Best wishes for immunotherapy success for your brother. Stay the course. Tom Link to comment Share on other sites More sharing options...
Rower Michelle Posted November 13, 2021 Share Posted November 13, 2021 Hey Glenn, That’s great news for you! You’re correct to be concerned about your brother’s weight loss. My weight was in a free fall when first diagnosed. The dietitian had me eat a lot of protein, healthy fats (walnuts & almonds) and a whopping 100 calories an hour on top of three good size meals. It was tough to do having to eat with no appetite but it did the job. Now with targeted therapy I have the reverse problem. Link to comment Share on other sites More sharing options...
catlady91 Posted November 18, 2021 Share Posted November 18, 2021 Amazing news!! I hope your brother gets better and manages to gain some weight. Has he seen a dietician? Dieticians can recommend supplements and meal plans to gain weight. Link to comment Share on other sites More sharing options...
LadyRoseBlade Posted January 9, 2022 Share Posted January 9, 2022 Glenn that is amazing news. I got that news as well and although I’m relieved, I still feel like I’m waiting for the other shoe to drop. Is it like this with every scan? I even cancelled a thyroid biopsy because I just don’t want to know. I’d like to hang on to the good news from the last scan LRB Link to comment Share on other sites More sharing options...
LouT Posted January 9, 2022 Share Posted January 9, 2022 LRB, It can be. I had my last scan in August. All was well and my Oncologist told me we were not going to annual scans. I was thrilled about the outcome, but now I'm nervous because it is so long between scans. When I let it get away from me (anxiety) I just cycle back to being grateful to be NED and living the life I've been given. Congrats on your news and who knows if there is another shoe...let's cross that bridge when we get there. Lou Link to comment Share on other sites More sharing options...
G.A.M. Posted January 9, 2022 Author Share Posted January 9, 2022 Hey, @LouT. In my recent research on our type of cancer I read one paper that said neuroendocrine carcinoma only has a 13.7% chance of returning. I do like those odds. Best, Glenn Link to comment Share on other sites More sharing options...
LouT Posted January 9, 2022 Share Posted January 9, 2022 Glenn, I like those odds as well. Happy New Year my friend. Lou Link to comment Share on other sites More sharing options...
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