VirginieTheSurvivor Posted December 25, 2021 Share Posted December 25, 2021 Hi everyone, It has been so refreshing and positive to read many of your stories since I was diagnosed yesterday with the rarest form of inoperable extensive neuroendocrine small cell lung cancer. I am a 38 year old French woman living in Norway and after 1 month of what was believed to be a pneumonia, they found a 7.5cm tumor in my right lung. Two bronchoscopy and one needle biopsy concluded that my left lung was not affected (yay!) but the PET scan revealed bone METS on my pelvis and hip bone. I’ll start chemo and immunotherapy on Jan 4th, and even though my doctor seemed to have no hope I would ever recover from this, I’m very positive and grateful for what I have at the moment. I have much less anxiety since the final diagnosis, I keep on reading testimonials of other cancer thrives that have gone into full remission or NED and I’m not going to let statistics and scans determine what my body can or cannot do. While I’m sure my physician is well intentioned (I asked him bluntly “what’s the point of treating me of you don’t believe I can get better? - He said “I don’t know everything and I can’t know how your body will react to the treatment. I have hope, I just don’t want to tell you it’s going to be easy), I’m also a bit surprised at the lack of holistic approach the medical team has been having so far. All they do is really on imaging and test rests. I asked them if they had any recommendations on what to eat or any lifestyle change, they said “no, just continue doing as you did before. Which they don’t even know! I am a non smoker, don’t drink alcohol, have been vegan for 12 years and am training as a natural bodybuilder but they ignore this since the question never came up. I have gloomy moments when, despite the fact that I have almost zero symptoms now, I’m sad at the reality of the disease, and others when I feel so hopeful and inspired by your stories (I read Montessa Lee’s story and want to kick cancer’s butt just like she did!) I hope I’ll get to find support on this page, especially when things will get rough. V. LouT 1 Quote Link to comment Share on other sites More sharing options...
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