Jump to content

Pet Scan Results and Treatment Plan


CH29

Recommended Posts

After a shocking first oncology visit last week to learn my hubby has metastatic adenocarcinoma, he went Friday to have a port put in and a pet scan.  Yesterday we met with his doctor and were told he has mets to liver, bone, lymph nodes.  Definitely not what we wanted to hear but yet here we are.

Tomorrow he starts chemo (Keytruda, Alimta, Carboplatin).  He goes every 21 days for treatment and after two rounds they will do a CT to check progress.  Praying for a positive reaction to the treatment.  The positive stories on this site are always so helpful and give hope.

Link to comment
Share on other sites

CH,

The surprise and shock of a lung cancer diagnosis is almost universal--a Stage IV diagnosis, especially so. Once it was akin to a death sentence. Now with immunotherapy (Keytruda) and the combination chemo treatment (Alimta and Carboplatin), there is every reason to expect good results from the mid treatment scan.

Hope is indeed a good thing but very fortunately, it no longer substitutes for effective treatment. Immunotherapy is a game changer, saving lives for the often late-stage diagnosed in this community.

You've done your research and good for you. Your husband's port installation will take the drama of accessing a vein out of the treatment equation. That is so very important! 

Let's call in the immunotherapy troops @Lisa Haines to share the good news treatment results with CH.

Stay the course.

Tom

Link to comment
Share on other sites

  • 1 month later...

Thanks for the above Tom, I have read your story and it was very inspiring.

Next, an update.  My husband had his third round of chemo today.  Prior to this we met with the doctor for results on a CT from this week.  The doctor was very pleased with the progress - his cancer has shrunk, in some areas significantly.  I had hoped for a good report, because he has just seemed better all around since treatment started (less pain, gaining some weight back).  Finally, some good news!!!  

Also, I had our home checked for radon and the levels were high, so we had that remediated.  We've lived there for 10 years and have raised our two children in this house, so another thing I'm trying not to worry about.  In our area no one ever talks about radon, this was something I knew literally nothing about

Link to comment
Share on other sites

CH,

As a retired civil engineer, I remember Radon entering my vocabulary in the mid 1980s. In certain parts of North America, there is very high risk of Radon accumulation in buildings, especially homes with below grade basements. I believe it is now classified as the second leading cause of lung cancer. 

I would suggest your children have a low dose CT scan and participate in annual screening as a result of their exposure. Medical insurance coverage won’t likely recognize the risk and may not cover the screening cost, but low dose scans have come down in cost so they are reasonably affordable.

Great news about your husband’s treatment. Let’s hope his end of treatment scan shows NED. 

Stay the course. 

Tom

Link to comment
Share on other sites

  • 1 month later...

Update on my husband...After 4 chemo treatments + immunotherapy, another CT was done.  This one showed continued improvement over the previous scan, so good news.  Doctor wants to continue with the same treatment for a couple more times since it's working and being tolerated fairly well.  His red blood cell counts were low today, so the next treatment was postponed a week, and he was given a shot to raise the red blood cells.  He's still working a fairly active job but has been so tired when he gets home and doctor thinks that's why.

For background, my husband is 45, non-smoker, no bio-markers.  I sympathize with others on here because it can be quite the roller coaster to find the correct diagnosis; in our case it was a year of many doctors visits and different doctors before cancer was confirmed.  

Take care all!

Link to comment
Share on other sites

CH,

I'm happy to learn your husband's treatment is moving things in the right direction. That is grand good news.

Of course your husband is tired if working. I worked through 12 of my infusions and was exhausted. I also experienced times where my red and white cell counts were low and indeed received Procrit for the red and Neulasta for the white. Neulasta was very painful but both worked.

Stay the course.

Tom

Link to comment
Share on other sites

  • 1 month later...

Hi - Just checking in with an update.  I always think there must be someone in the same situation that may benefit from these posts.  So my husband finished his chemo.  Around the 5th round of Carboplatin, Alimta & Keytruda his bloodword went into the tank and he had to have a few blood transfusions.  For the 6th round they dropped the Carbo and gave a reduced dose of Alimta and the Keytruda.  The latest CT scans after this were good and showed continued improvement.  'Near complete resolution' of lymph nodes was great to hear.  Also liver mets were decreased in size again.  At this point the plan is to do a Keytruda immunotherapy infusion every 3 weeks, so hopefully that will continue with good results.

Also - I requested a brain scan after reading all the posts on this site.  It had never been suggested, I guess because he had no symptoms.  Luckily it was clear.  Take care all!

Link to comment
Share on other sites

@CH29This is great news. Enjoy the results.

I am in the same space as your husband. I guess we are having the same journey. Had my PET scan yesterday after 6 infusions. Almost complete resolution of the nodes and significant reduction in the lesions. Doc said minimal disease now.

Now on maintenance therapy, have dropped carboplatin and only on Alimta and Keytruda for another 5-6 infusions and then a PET scan.

Enjoying my first good news in days. A toast to you too.

Link to comment
Share on other sites

On 2/15/2022 at 9:06 AM, CH29 said:

After a shocking first oncology visit last week to learn my hubby has metastatic adenocarcinoma, he went Friday to have a port put in and a pet scan.  Yesterday we met with his doctor and were told he has mets to liver, bone, lymph nodes.  Definitely not what we wanted to hear but yet here we are.

Tomorrow he starts chemo (Keytruda, Alimta, Carboplatin).  He goes every 21 days for treatment and after two rounds they will do a CT to check progress.  Praying for a positive reaction to the treatment.  The positive stories on this site are always so helpful and give hope.

So sorry to hear that. I remember how I felt hearing that I had stage 4 adenocarcinoma NSCLC. That was a bit over two years. I had immunotherapy, target therapy, and now chemotherapy. I would get a second opinion if I got anything I didn’t like in regards to the treatment plan. I have been told to find a “comprehensive cancer” center if possible, as they typically get better results than those who lack that designation.


Immunotherapy and targeted therapy is a game changer for many of us! Trials are also a promising bet, as  I have been told. I think it’s also a wise idea to ask about palliative care to be added to the plan.
 

Last of all, I am getting my fifth chemotherapy infusion (three months so far),  as I am typing. It has not been that bad, hair loss and fatigue for a few days after my infusion. They have found ways to eliminate the agony many experienced in the past, so if they offer it, it’s worth trying. You can also halt it at any point.
 

Lastly, I would ask for a panel of genes from Foundation One to reveal any targetable gene mutations, if you haven’t gotten this information yet. It needs doing before any treatment.

Good luck to both of you!

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Restore formatting

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.