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My recent Oncologist visit.


G.A.M.

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Still NED. The next appointment is in six months. 

This is the most relaxed I've been since I first received the DX. My goal was to live long enough to see my baby girl walk for her BS degree from the university on May 7, 2022. 

It wasn't all good news, however. The vascular surgeon, who placed a stent in my subclavian artery before I could have chemo, ordered two ultrasound studies to be sure it was doing okay, and it isn't. He'll talk to me on March 15, 2022, to discuss next steps. If it's another heart catheter, it will be my eleventh. I think I'm going to assist with that much experience!

The Oncologist is insisting on a colonoscopy. He didn't like the way my large bowel looks. I hope it's just something to do with the 1/3 resection of my colon done just before the lung surgery. I'll see the GI doc on 3/24/2022 for a consult.

I've gained back 10 pounds of the 85 pounds I lost and I feel overweight. 

I'm selling the Harley-Davidson I bought just days before all of this started. I never got to ride it. I just don't have the muscle anymore. 

That's all the news that is news.

Thanks so much for your support.

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Hi Glenn, 

I know how you feel, even though it's NED, not exactly a victory lap with all these specialty appointments coming up.  I do understand the disappointment of selling the Harley--- we're looking at a similar situation with my rowing shell... targeted therapy has caused me to gain weight so now I'm almost too heavy for it.  Buying another one doesn't make sense with the prices having skyrocketed.  We could likely sell my boat (from 2014) for more than we paid for and as you know, it's not about the money, but losing something you enjoy.  

On of the ideas I cam up with last year was to have my oncologist write a prescription for general strength and conditioning in physical therapy.  That turned out to be a pretty smart move.  If anyone told me last June when I started that I would still be in PT once a week, I would have thought it to be a joke.  The recovery is a long and slow however, I am making progress.   

You might also be eligible for cardiac rehab too.  I guess this is a long way of saying hang in there and I hope these appointments get things moving in the right direction. 

Michelle 

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