RJN Posted March 4, 2022 Share Posted March 4, 2022 As I left a tray of Danish pastries for the radio staff, and handed back the hospital gown I have used for 35 sessions over 8 weeks I got a bit emotional. It has been really draining, and there have been days where I just couldn’t see the light at the end of the tunnel. But here I am with only minuscule side effects. The last three rounds of SABR were really agonising due to the position I had to hold my arms/shoulders, and the daily waits have been tiring. But my gosh - I am so grateful for the free, friendly and top-of-the line treatment we are given here in the UK. I am now given a three-week break before I go back on Keytruda. Thank you also to people on here who have checked in and been supportive through this part of my treatment journey. I’ll have a nap with the cat, a glass of wine and an early night ❤️ Tom Galli, Judy M2, Karen_L and 9 others 12 Quote Link to comment Share on other sites More sharing options...
LouT Posted March 4, 2022 Share Posted March 4, 2022 What a great way to show gratefulness for the treatments the people provided. I'm so glad that you got through with few side-effects and can't want to hear about the scans you will undoubtedly have in the future. I look forward to good news. Enjoy the break and I bow to your strength and courage. Lou Izzy and RJN 2 Quote Link to comment Share on other sites More sharing options...
Tom Galli Posted March 4, 2022 Share Posted March 4, 2022 RJN, Oh my, the real deal Danish! Quite a treat. Glad phase one is over. Hoping and crossing fingers and toes that Keytruda works--period! Stay the course. Tom Izzy, RJN and LouT 3 Quote Link to comment Share on other sites More sharing options...
Justin1970 Posted March 6, 2022 Share Posted March 6, 2022 That's brilliant rikke I'm so pleased you got through the treatment and thank you for all your support x RJN, LouT and Izzy 3 Quote Link to comment Share on other sites More sharing options...
RJN Posted March 7, 2022 Author Share Posted March 7, 2022 You are welcome 😊. For some reason the fatigue has now hit me like a sledge hammer. Opening the door for the cat, emptying the dishwasher, going upstairs - each action feels like an enormous project. Went to hairdresser yesterday, and had to sleep for two hours to recover (it’s 20mins walk each way). I am not surprised given the assault of radiation over 8 weeks, but a bit of a shame now that I finally have a bit of time off to do other things and weather is lovely. X LouT 1 Quote Link to comment Share on other sites More sharing options...
Justin1970 Posted March 7, 2022 Share Posted March 7, 2022 I hope it passes quickly and you can start enjoying life again x LouT and RJN 2 Quote Link to comment Share on other sites More sharing options...
Judy M2 Posted March 17, 2022 Share Posted March 17, 2022 This fatigue will pass. If you can, increase your protein intake. (Sorry for the late reply.) LouT 1 Quote Link to comment Share on other sites More sharing options...
RJN Posted March 18, 2022 Author Share Posted March 18, 2022 Thank you Judy, I have been well enough to do a little trip to Denmark to see my elderly mum, her sister and my dad. It has been weighing on me that the last time I saw her was to break the news of my diagnosis and I think she desperately needed to see me doing just fine. I am still ridiculously tired and sleeping 12 hours a night plus a daytime kip but no longer feeling poorly. So yeah, I know it’ll pass (and eating lots of protein 😊). As always, you guys are such a wonderful support. Thank you, Rikke LouT 1 Quote Link to comment Share on other sites More sharing options...
LouT Posted March 19, 2022 Share Posted March 19, 2022 Great news Rikke...visits like that can be a tonic for us. Take care and keep on moving. Lou Quote Link to comment Share on other sites More sharing options...
Justin1970 Posted March 19, 2022 Share Posted March 19, 2022 That's brilliant rikke I'm glad your feeling well you deserve some respite after all the treatment it's lovely when you here good news stories Take care Justin x LouT 1 Quote Link to comment Share on other sites More sharing options...
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