Jump to content

Recommended Posts

Hi my name is Val. I was diagnosed in May 2019 at age 26. Any other young adult survivors out there?

Right now I'm 29 years old. I have a degree in medical lab technology but i could never use it because I have pain and fatigue from the cancer. I'm pretty active mentally though.

I live with my husband and my wonderful cat. I love nature,science, music, God, books, and art. I always am learning something new every day, and i am a curious person. I'm also religious and i put a tremendous amount of faith in God and Jesus.

I have been through seven different types of therapy, including chemo, immunotherapy, targeted therapy and clinical trial. Right now they have no options for me unless I'm a good fit for another clinical trial. I'm just doing palliative care for the pain and fatigue.

Despite this, i try to stay positive. I'm somewhat healthy right now, because I'm off of all medicine, so I'm doing everything i always wanted to do. Everyday is an adventure.

I just want to live everyday to the fullest with joy and happiness.

 

Have a blessed day. 

IMG_20220422_152446_250.jpg

Link to comment
Share on other sites

Hi, Val.

I'm so glad you are here, even if your reasons for being here stink. You've had quite a road since your diagnosis. I will keep my fingers crossed that a trial comes up that is a match for you. It's wonderful that you are doing the things you love!

One young adult survivor group I have found is on instagram.  @thecancerpatient is irreverent, profane, and often makes me laugh out loud. There's a Discord community, too, and a podcast called (surprise!) The Cancer Patient Podcast. The podcast includes messages from patients and has an oncology social worker involved too, so you get a variety of perspectives. 

There's so much information on this site; I hope you'll find something that helps, even a little. 

Please keep us posted as to how you are doing!

Karen

 

Link to comment
Share on other sites

Val,

Welcome to the club that nobody wants to be a member of.  I too was diagnosed in 2019 and had a lobectomy on May 2nd the same year.  You mention having had treatments without mentioning any success, failure of outcome.  Your tone would indicate that you are at a point where there are no treatment options.  In order for us to share our experiences and provide some support can you tell us a bit more about your diagnosis (stage, factors, biomarkers, etc.), treatments, outcomes, and any clinical trials you looked into.  There is such a wide swath of people on the forum that whatever you write somebody will have information for you that will prove useful.  I look forward to hearing more from you.

Lou

Link to comment
Share on other sites

Hi Val,

Keep up the positivity! I too was diagnosed with SCLC. I had chemo and radiation which shrunk my nodule and lymph node tumors. I am currently in a clinical study to see if MRI of the brain alone is as good as PCI of the brain to watch for metastasis. There are many clinical trials and I hope one will be available for you. Keep living life to the fullest! Praying for you.

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Restore formatting

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.