G.A.M. Posted June 11, 2022 Share Posted June 11, 2022 I was NED in early Feb, and my subsequent CT was scheduled for late July. I've been getting light-headed when standing lately and passed out Tuesday evening, hitting the floor hard. I broke my right wrist, my eye socket fractured, badly bruised my right hip, and a tiny brain bleed. A CT also revealed a 2.5cm mass in my right lung and 2 impacted lymph nodes. So here I am again. Hearing it now was easier than the first time, but it stripped me of my hope, which really hurt. When I first heard the news, I asked for two things. To see my grown son again and to watch my baby daughter graduate from college with her engineering degree. Both happened in May, and I'm good to go if I must. Tom Galli, ChiMama, Justin1970 and 3 others 6 Quote Link to comment Share on other sites More sharing options...
LouT Posted June 11, 2022 Share Posted June 11, 2022 Hi Glenn, I am so very sorry to hear about what happened to you. I sure hope your wounds are healing as you took one hell of a fall. I can only imagine how hard it is to hear that the LC is active again. I get my next scans in August and it's my first annual scan and that makes me nervous for the exact reason you're citing. But, please don't give up hope. Have you had a clear diagnosis and treatment plan explained to you? Unless you have been informed otherwise there is always hope in a different treatment, approach or even a trial. Please stay in touch, you don't have to go through this alone. There are still a lot of memories for you to make. Lou BridgetO, Justin1970, G.A.M. and 1 other 4 Quote Link to comment Share on other sites More sharing options...
Tom Galli Posted June 11, 2022 Share Posted June 11, 2022 GAM, Well, this situation just sucks! You can choose to be "good to go" but you might want to consider locking and loading and proceeding purposefully down range to engage and destroy your lung cancer again. You've got choices! Stay the course. Tom Justin1970, BridgetO, LouT and 3 others 6 Quote Link to comment Share on other sites More sharing options...
BridgetO Posted June 14, 2022 Share Posted June 14, 2022 Just damn for sure, Glenn! I understand how discouraged you must be, with both your injuries and a recurrence. I agreue with Tom that althought you're "good to go" you've got choices. I hope you'll get back with your oncologist(s) ASAP and find out what treatments there are for you. Hang in there! Tom Galli, LouT and Justin1970 3 Quote Link to comment Share on other sites More sharing options...
Susan Cornett Posted June 17, 2022 Share Posted June 17, 2022 Oh Glenn - I hate to hear this. Just the fall alone would suck. I hope your team has some good options to take a swing at this cancer again. LouT and Justin1970 2 Quote Link to comment Share on other sites More sharing options...
LilyMir Posted June 17, 2022 Share Posted June 17, 2022 So sorry to hear! If there are tolerable treatments, why not go after this cancer too? Science is advancing so fast, who knows what cures may be awaiting us all soon. There were amazing new stories of cancer breakthroughs just this past week. Keep up the hope! BridgetO, Justin1970 and LouT 3 Quote Link to comment Share on other sites More sharing options...
Karen_L Posted June 23, 2022 Share Posted June 23, 2022 Well, damn indeed. This stupid lung cancer is just so sneaky and SO relentless. And the broken bones and bruises are just no fair. What's next re: the stupid cancer? Karen Tom Galli, Justin1970 and G.A.M. 3 Quote Link to comment Share on other sites More sharing options...
G.A.M. Posted June 23, 2022 Author Share Posted June 23, 2022 11 hours ago, Karen_L said: What's next re: the stupid cancer? Karen I had a CT Scan of my pumpkin y'day. Brain bleed is small but persistent. Re the cancer, I can't get a PET scan until the 2nd week of July. I'm unhappy about that. Regards Justin1970, Tom Galli and LouT 1 2 Quote Link to comment Share on other sites More sharing options...
Justin1970 Posted June 23, 2022 Share Posted June 23, 2022 Sorry to hear your sad news I hope you recover soon and get some better news for your lung cancer all the best take care Justin Izzy 1 Quote Link to comment Share on other sites More sharing options...
Karen_L Posted June 23, 2022 Share Posted June 23, 2022 7 hours ago, G.A.M. said: Re the cancer, I can't get a PET scan until the 2nd week of July. I'm unhappy about that. Jeez, I would be too. Is there another place that could do it? At the same time, at the very beginning, when I was undergoing tests etc., I remember feeling like the pace was glacial even though one of the physician's assistants assured me the process I was experiencing was lightning-quick. Talk to other docs if you need, and keep us posted! Justin1970 and Tom Galli 2 Quote Link to comment Share on other sites More sharing options...
G.A.M. Posted June 24, 2022 Author Share Posted June 24, 2022 28 minutes ago, Karen_L said: Is there another place that could do it? I received a letter from Blue Cross/Blue Shield today denying both a PET and CT scan. My Oncologist hasn't proven that there is a medical necessity to the anonymous Doctor who has never examined me. I don't know how long its will be now. I'm trying to remain calm. Justin1970, Tom Galli, ColleenRae and 1 other 4 Quote Link to comment Share on other sites More sharing options...
Karen_L Posted June 24, 2022 Share Posted June 24, 2022 Your oncologist needs to get his or her butt on the phone and have a long conversation with Dr. Anonymous. I know my radiologist had to, in order to give the more advanced treatment she preferred. Are you bound to the oncologist or can you find someone different? I'm sure other folks will have more thoughts.... Don't quit-- Tom Galli, LouT, ColleenRae and 1 other 4 Quote Link to comment Share on other sites More sharing options...
LouT Posted June 24, 2022 Share Posted June 24, 2022 I'm with Karen on this. You need to get your Oncologist to earn their money and push back for you. Please don't let them delay. Lou ColleenRae, Tom Galli and Justin1970 3 Quote Link to comment Share on other sites More sharing options...
G.A.M. Posted June 24, 2022 Author Share Posted June 24, 2022 13 minutes ago, Karen_L said: Are you bound to the oncologist or can you find someone different? I love the guy. I'm sure he'll push back. I just want this thing out of my body sooner than later. Justin1970, LouT and Tom Galli 3 Quote Link to comment Share on other sites More sharing options...
LouT Posted June 24, 2022 Share Posted June 24, 2022 Glenn, I couldn't agree with you more and understand exactly how you feel. Hang in there. If he is pushing back results could come very quickly. Lou Justin1970 and Tom Galli 2 Quote Link to comment Share on other sites More sharing options...
Judy M2 Posted June 24, 2022 Share Posted June 24, 2022 The irony is that CT scans are not expensive. PET scans are. If your oncologist isn't successful with the appeal and you can afford it, it is possible to pay out of pocket. I had a chest CT scan done a couple of years ago for $125. Tom Galli, LouT and Justin1970 3 Quote Link to comment Share on other sites More sharing options...
Susan Cornett Posted July 7, 2022 Share Posted July 7, 2022 I'm late to this part of the conversation. Has anything changed with your insurer? You may have grievance appeal options and/or you can file a complaint with your state's department of insurance. Tom Galli and LouT 2 Quote Link to comment Share on other sites More sharing options...
BridgetO Posted November 14, 2022 Share Posted November 14, 2022 Glenn, Long time, no see! What's up? Hope you're doing OK. LouT and Tom Galli 2 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.