JessC Posted August 16, 2022 Share Posted August 16, 2022 Hello to this very helpful community! I last posted here almost two years ago (but I still read sometimes when I need a reminder of all the hope ). At the time, my Mom had just been diagnosed with adenocarcinoma Stage 1B (they caught this incidentally during a scan of her heart). My mom had surgery to remove a larger mass (and part of the surrounding tissue). Then she had three rounds of SBRT radiation that targeted two smaller nodules that had lit up in her PET scan. She's been on Tagrisso since the surgery and she has follow up CT scans every three months. Everything has been pretty positive since radiation - the masses targeted with radiation have been shrinking. Other smaller nodules that are scattered around her scan haven't grown. At her last scan (August) they found a new 5-6mm nodule. Her oncologist said they wanted to watch the nodule and scan again in 3 months. He said it could be mucus(?), it could be cancer... Her medical notes say it is "suspicious" for metastatic tumor or a new primary cancer. This nodule was not present at the May scan. My family and I feel skeptical about waiting...given her history, it seems likely to us that the new growth is cancerous. After processing the appointment, we messaged the medical team and her nurse practitioner wrote back saying her "scans were stable" and that there was no need for a biopsy or PET scan at this time. My question to the community is - what has your experience been with new growths and a wait-and-see treatment plan? I realize that 3 months is not a very long time to wait, but we of course are anxious and we aren't sure if we should push harder for something else and if so, what? She's at Northwestern in Chicago which is one of the best lung cancer treatment programs in our area - it's just hard to trust sometimes. Thank you in advance for your wisdom -J BridgetO and Justin1970 2 Quote Link to comment Share on other sites More sharing options...
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