Kamoto Posted August 23, 2022 Share Posted August 23, 2022 I’ve always enjoyed cookies, cake and other unhealthy snacks, but no matter how much I eat these days, I’m dropping weight. About 2 lbs a week. Since may I’m down about 10 lbs. I’m 6 ft, 187 which is close to ideal weight, but I know the doctors won’t like this weight loss. On hold for the chemo radiation as radiologist wants to see if the esophagus tumor has miraculously shrunk on Tagrisso. Since I have zero swallowing issues, he isn’t in a hurry. Now I wait for the next PET scan. Quote Link to comment Share on other sites More sharing options...
Rower Michelle Posted August 24, 2022 Share Posted August 24, 2022 Hello there! A few of my. friends are on Tagrisso and they all have an issue keeping weight on. It's a constant battle. The best guidance they received was to incorporate high calorie/high fat foods into their diet. Unfortunately, it's not the fun list most of us think of. Tricks like adding an avocado to smoothies (the whole one; not half like most recipes suggest). Chia pudding with almond milk (google around some recipes); ground flax seed/ground hemp seed with applesauce, nuts and nut butters, Walnuts, almonds and macadamia nuts are pretty high in calories. You can sprinkle chia seeds or others nuts into oatmeal. Getting adequate protein is important. All of this means is that you will have to eat even when you are not hungry. If you have no appetite; or poor appetite; my friends have gotten synthetic THC from their palliative care teams to stimulate the appetite. It's great news you picked up on this because; you're correct in that the oncs don't like to see weight loss. I've been told by my team that a healthy cancer weight is 25lbs above my normal adult weight as "an insurance policy". So you might want to ask about your weight targets.... Good luck and keep us posted! Michelle Tom Galli and BridgetO 2 Quote Link to comment Share on other sites More sharing options...
Judy M2 Posted August 24, 2022 Share Posted August 24, 2022 Michelle, I didn't know about the recommended 25 lbs. of extra weight, but after losing 20 lbs. after radiation, I regained it and intend to keep the extra padding. Kamoto, I know that people lose weight on Tag because of loss of appetite or change in taste. THC does help with appetite. Your doctor may also have some recommendations for gaining weight. Rower Michelle 1 Quote Link to comment Share on other sites More sharing options...
Kamoto Posted August 24, 2022 Author Share Posted August 24, 2022 Thanks Michelle/Judy. I'm a fan of Indica, which makes you sit on the couch like a log and I usually get the munchies. Maybe I'll pick up some gummies this week. I also with experimentation figured out in no way shape or form can I skip the anti diarrhea medicine. If I do that, it takes me a few days to regain control. I take Morphine twice a week which helps with digestion and ensuring no diarrhea. I take my anti diarrhea medicine and Tagrisso at night. Even my nose acne has gone away, so I'm at zero side effects. Who do I kiss at Astra Zeneca? LOL Judy M2 1 Quote Link to comment Share on other sites More sharing options...
Ariharry Posted March 5 Share Posted March 5 On 8/25/2022 at 1:47 AM, Rower Michelle said: Hello there! A few of my. friends are on Tagrisso and they all have an issue keeping weight on. It's a constant battle. The best guidance they received was to incorporate high calorie/high fat foods into their diet. Unfortunately, it's not the fun list most of us think of. Tricks like adding an avocado to smoothies (the whole one; not half like most recipes suggest). Chia pudding with almond milk (google around some recipes); ground flax seed/ground hemp seed with applesauce, nuts and nut butters, Walnuts, almonds and macadamia nuts are pretty high in calories. You can sprinkle chia seeds or others nuts into oatmeal. Getting adequate protein is important. All of this means is that you will have to eat even when you are not hungry. If you have no appetite; or poor appetite; my friends have gotten synthetic THC from their palliative care teams to stimulate the appetite It's great news you picked up on this because; you're correct in that the oncs don't like to see weight loss especially if you have physical activity like playing ping pong with joola. I've been told by my team that a healthy cancer weight is 25lbs above my normal adult weight as "an insurance policy". So you might want to ask about your weight targets.... Good luck and keep us posted! Michelle Michelle, thanks for the recommendation, I'll tell my grandfather. I will try to keep track of his nutrition Rower Michelle 1 Quote Link to comment Share on other sites More sharing options...
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