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Hoping to learn more about LC - Darius


Darius

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Hi, my name is Darius Audryc from Singapore, and I've been fighting stage IV NSCLC / Adenocarcinoma since March 2021. I am now 30 years old.

Although I have a stage IV LC, the tumour has only spread within the lung. However, I have a unique situation where my left tumour is more sensitive to chemo than my right tumour. Most of the doctors I met assumed that I might have two different type of cancers. And since the right lung tumour is more stubborn, we only did a genetic testing on the right lung tumour. Unfortunately, the result has shown that I do not have any known biomarkers. So I have less than 1% PDL1, no EGFR, ALK, BRAF, etc.

My current treatment is chemo: Texotere (90mg) and immuno: Keytruda (200mg).

I am hoping to learn more from people who have similar experience, which is stage IV NSCLC with less than 1% PDL1. What type of treatments have you done that is effective, and what other complications that you encountered?

I am glad to learn about this community and hope to learn as much as possible.

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Darius 

Welcome here sorry that you have to be though, I dont know anything about immunotherapy I'm afraid I'm fairly sure I have less than 1% PDL1 and I had chemotherapy and radiotherapy done at the end of last year for right upper lobe lung cancer and lymph nodes, I hope someone will come along with some answers for you 

All the best and goodluck Justin 

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Welcome Darius! Breaks the heart to see younger and younger patients here. However, you reached the best forum for LC patients on the web.

I did not have experience with immuno but I did chemo and it was not easy but it passed. Is there a reason they are not operating to remove the cancer surgically (was it because lymph nodes were cancerous too)? Did doctors consider radiotherapy? Also, I would push for every tumour sample to be biomarker tested, I can't understand why doctors are not obliged to do that for every patient.

Hope your journey with lung cancer ends with good news, stay optimistic and keep us posted.

 

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