Joost Voorthuis Posted December 23, 2022 Share Posted December 23, 2022 I am Joost V and been on this trial approximately 8 months. Started with 25 mg ( no change in module size ) that was good. Then progressed to 50 mg and a few weeks later to 100 mg, (nodules were reduced which is great news) Broke out with lots if skin problems and doses were reduced to 75mg Skin problems still there. A bit of a problem. Have appointment on the 27th. Will see what we can do. My question is to everyone. Have you had skin issues as well? Love to hear from everyone and wish all a Merry Christmas Quote Link to comment Share on other sites More sharing options...
Tom Galli Posted December 24, 2022 Share Posted December 24, 2022 Joost, Welcome here. I Googled your trial information and learned you are enrolled in a Black Diamond Therapeutics drug trial for acquired resistance EGFR mutation in NSCLC, adenocarcinoma. Early on in my treatment, I had a Targeted Therapy drug called Tarceva, but it was administered before scientists realized it only worked on a small percentage of EGFR adenocarcinoma patients. My NSCLC was squamous cell, and the only thing it did for me was give me skin and digestive issues. And again, since I had the drug very early on, there was nothing available to address the severe acne that invaded my face, head and neck. The good news of you post however is the nodule reduction. That indicates the drug is working and if so, that is the best of news. Merry Christmas to you and again welcome. Stay the course. Tom LouT 1 Quote Link to comment Share on other sites More sharing options...
Joost Voorthuis Posted December 24, 2022 Author Share Posted December 24, 2022 Thank you for the note and Merry Christmas LouT 1 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.