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Diagnosed in December 2022


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I recently was diagnosed - out of the blue (and hopefully not into the black). No symptoms until my brief episode and was very quickly diagnosed via a CT guided lung biopsy. I have an EGFR + lung cancer with some spread to the lining of the brain (leptomeningeal enhancement) which was diagnoses after a brief episode of aphasia (difficulty finding my words). I feel ok now - the episode which was transient and I have no symptoms now. I finished my first week of osimiternib (which I am sure I will misspell more than once) and am really starting this journey. I am 54 , otherwise healthy and working to adjust to this new normal. Still a little shell shocked but I am blessed to have such great support from my family, friends and colleagues and am glad to have found this group. I hope to do whatever I can , in any way, as I navigate this illness, to help anyone else out there who I can because I know that all the words of encouragement, prayers , thoughts have made a world of difference for me. 

Thanks 

RT 

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Welcome to the club no one ever wanted to join. You'll soon hear from several others on the forum who have a lot of great advice to offer. I'm so happy that you have a great support system - it really does make a difference. We have a lot of long term survivors on here. Their stories got me through this and will help you, too. Keep us posted on your progress.

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Sorry you have to join us but welcome RT to this wonderful forum, and to team Tagrisso (Osimertinib) in particular. Diagnosed last Spring at 49, I am on this targeted therapy too since Sep 2022. Had surgical resection and chemo before that. Hopefully your cancer responds marvellously to this targeted therapy. Take care!

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Who would have ever thought that the central nervous system would be so appealing to lung cancer! I am glad you received a prompt diagnosis; I'm glad that you have made your way here. 

Karen

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