lovingdaughter1990 Posted January 23, 2023 Share Posted January 23, 2023 more bad news after bad news it seems. As of a week ago my dad was rushed to hospital. He was so weak he could not move and did not look well at all. Earlier that day he had rolled his ankle which made him unable to walk. They found an infection in the lung and that his tumour had grown, even after 4 radiation treatments. His blood pressure was very low with high calcium levels in his blood and high white blood cells. His potassium and magnesium was very low. He was started on antibiotics and fluids among other things then was given a blood transfusion due to low hemoglobin. He is now unable to move his legs or do any bodily functions below the waist. they did a ct on his spine and found that his spine mets has caused 2 fractures. his cancer is growing extremely quickly and i am so angry that they didnt even start a first line treatment to begin with. seems there has been mistake after mistake here. it has only been maybe 4 months since we found out he has lung cancer. it blows my mind. the oncologist will meet with him to see what his options are regarding what they can do if anything in a few days. what a hell we have been through (mostly him) its just so unfair and im extremely angry. he will not win this battle they have made that clear. Judy M2, LouT, catlady91 and 3 others 6 Quote Link to comment Share on other sites More sharing options...
LouT Posted January 23, 2023 Share Posted January 23, 2023 Lovingdaughter1990, We're so sorry to hear about your father's worsening condition. This disease is so tough on everybody involved; patient, family, and friends. The diagnostic process can often seem long and is sometimes maddening, but I honestly can't speak to Canada's healthcare system. When your father meets with the oncologist it would be wise to have another family member there, both to ask questions, and determine any alternative treatments available. You also need to speak to your dad and ask him what he wishes to do going forward. Yes, this is a difficult conversation but you want to ensure that his desires are being considered in any decision making. Your father and family are in my prayers. Lou Tom Galli, BridgetO and Justin1970 3 Quote Link to comment Share on other sites More sharing options...
Tom Galli Posted January 23, 2023 Share Posted January 23, 2023 Lovingdaughter1990, It pains me to read about your father's maltreatment! I wish I could offer a solution. I'd certainly push for a change in your dad's treatment team if that is allowed in Canada's medical system. Stay the course. Tom Justin1970 and LouT 2 Quote Link to comment Share on other sites More sharing options...
LilyMir Posted January 24, 2023 Share Posted January 24, 2023 Gosh, so sorry to hear, I just read this. Does your dad have a lung cancer specialist at BCCA? Did you ask if they are holding a tumour board to discuss his case if things are that dire? That may the best way to have both radiation and medical oncology discussing his case together. I am still not sure why there were long delays in starting treatment but you are entitled to ask for answers so advocate for your dad. You are also entitled to have a second opinion and be considered for clinical trials. Hope things improve somehow! LouT, Tom Galli and Justin1970 3 Quote Link to comment Share on other sites More sharing options...
Justin1970 Posted January 24, 2023 Share Posted January 24, 2023 Lovingdaughter1990 I'm so sorry to read this, my thoughts and prayers are with you and your dad at this difficult time, try and stay strong for each other, I hope you get some better answers All the best Take care Justin x Izzy, Tom Galli and LouT 2 1 Quote Link to comment Share on other sites More sharing options...
Izzy Posted January 24, 2023 Share Posted January 24, 2023 So so sad to hear your news, life is so cruel, I still say don't ever give up, where there's life there's a hope , stay as strong as you can for your dads sake as well as yours x thinking about you and sending lots of love and hugs xx Isla xxx LouT, Tom Galli and Justin1970 3 Quote Link to comment Share on other sites More sharing options...
Karen_L Posted January 26, 2023 Share Posted January 26, 2023 By being as assertive as you can be right now, you will have the sense that you managed in a flawed system. I am wishing you courage and peace. Karen LouT, Justin1970 and Tom Galli 3 Quote Link to comment Share on other sites More sharing options...
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