Maryloumoo Posted February 9, 2023 Share Posted February 9, 2023 My CT / lung scan is tomorrow. I will also have a sniff test - back story: phrenic nerve was damaged during lobectomy causing a lot of breathing issues - the hope is that it’s getting better- we shall see but my breathing isn’t better. It’s been a very, stressful and long road since my surgery in May. I do not see an oncologist for the lung cancer, should I? I see one of the doctors in the thoracic surgery practice that did my surgery. The actual surgeon left the practice. I feel so lost. I looked at the biopsy results and there’s so much I don’t know lots of tests / results that I don’t understand. I am not even sure what stage. Anyway. I had some other nodules that were too small to deal with at the time so I sure am hoping they’re gone. Hope all of you are doing well. Tom Galli, Justin1970 and LouT 3 Quote Link to comment Share on other sites More sharing options...
Susan Cornett Posted February 10, 2023 Share Posted February 10, 2023 Hi - Your surgeon or family physician should be able to refer you to an oncologist. You definitely need an oncologist because they will have the most knowledge to share regarding your diagnosis and treatment options. Maryloumoo, Justin1970, LilyMir and 1 other 4 Quote Link to comment Share on other sites More sharing options...
Maryloumoo Posted February 10, 2023 Author Share Posted February 10, 2023 Thanks, Susan. I’m not sure why the surgeon wouldn’t have referred me to an oncologist for this cancer. I have an onc. For another cancer and thankfully I am on my year five of NED come May. I haven’t had an appt with her since they found the lung nodule. I’m making a list of questions for this surgeon, hope he can help me feel a bit more at ease. LouT, Justin1970 and Tom Galli 3 Quote Link to comment Share on other sites More sharing options...
Tom Galli Posted February 10, 2023 Share Posted February 10, 2023 Maryloumoo, I'll reinforce Susan's suggestion. You have lung cancer, and the branch of medicine that treats our disease is a medical oncologist. Thoracic surgeons, radiation oncologists, and pulmonologists are on the team but the medical oncologist is the quarterback. You ought to be able to choose one and self-refer if your surgeon is not cooperative. Stay the course. Tom LouT and Justin1970 2 Quote Link to comment Share on other sites More sharing options...
Karen_L Posted February 11, 2023 Share Posted February 11, 2023 I’ll add one thing to Tom’s comment. Be sure to get an oncologist who is a lung cancer specialist. The field is changing so fast that a general oncologist won’t have the latest research-based knowledge, or rapid access to it. Hang in. We’ll be here and eager to hear from you. Justin1970, LouT and Tom Galli 3 Quote Link to comment Share on other sites More sharing options...
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