LilyMir Posted February 19 Share Posted February 19 Hi everyone, the past 1-2 weeks I have been feeling a lot of fatigue. As you may recall, I am on Tagrisso targeted therapy (since Sep 2022), my last CT scan was Dec and was NED as they reported after which they told me my next scan won't be until July! This (new) fatigue is bizarre, I feel sleepy with very heavy eyes. It resembles the feeling you get when you have not slept for days. I however have been sleeping, not great, but OK (I think). I intentionally try to sleep earlier and wake up later but I cannot shake this "sleepy too tired I just want to nap" feeling. Today I could not stop yawning as I was out with my kid for hours! Not yawning since I came home though. Really bizarre (and it does not help when you google and get results that yawning can be a symptom of a brain tumour!). Of course I am so worried now, recalling how fatigue was my only symptom before diagnosis (though it was not the sleepy type then). I called my oncologist and she is not returning my calls (yeah, lucky us in BC!). I tried the on-call emergency oncologist today out of despair but he seemed not too worried as he put it. He told me he does not think it is an ER kind of thing (unless I start having shortness of breath at rest) and that he will email my oncologist in case she wants to do tests (she never called me so far and my past experience is that she does not care, even when I had severe side effects of chemo!). I also mentioned this to my family doctor and he did not seem to make much of it, he though prescribed anti-acid medication after asking me if I get acid reflux (I do sometimes but not often and it is manageable for the most part with TUMS) and he said reflux can cause fatigue... I cannot help being concerned as this is not normal for me, I have never felt this sleepy, on and off during the daytime (it comes and goes). I don't feel like having much energy either, not even for gentle yoga (I used to have better energy, at least sometimes). Has anyone here had such symptoms? I am not sure if it is Tagrisso related, cancer related, or mental health/anxiety related. So depressing. Izzy, Justin1970 and LouT 3 Quote Link to comment Share on other sites More sharing options...
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