Judi snavely Posted May 5, 2023 Share Posted May 5, 2023 Since 2014 I have had NED of SCLC of right lung. ONC will not say I am Cancer Free or in remission due to possibility of cancer return. Anyone with relapse after 9 years? Also brain radiation. Tom Galli and Dee642 2 Quote Link to comment Share on other sites More sharing options...
Dee642 Posted February 15 Share Posted February 15 I’ve seen posts, in another group, where it has returned. I’ve also seen some 14-20 years out no reoccurrence. I don’t think anyone knows for sure. Be sure to pay attention to your body if anything changes go see your doctor. Tom Galli 1 Quote Link to comment Share on other sites More sharing options...
Karen_L Posted March 1 Share Posted March 1 I know people who have had recurrences and who continue to live lives of meaning almost 20 years after diagnosis. My oncologist does not use the term NED with lung cancer. The term even the doctors who read scans use is "stable." I'll take it. There are no guarantees, there is no way to know. I think coming to to peace with this is the hardest work of living with lung cancer. I have had gamma knife for a brain met, but not whole brain radiation. Tom Galli 1 Quote Link to comment Share on other sites More sharing options...
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