betplace Posted March 19, 2004 Share Posted March 19, 2004 Hi and greetings! Just got home from a week in the hospital. Started last wed with a fever of 101, I got it down, but then on Thursday temp went up to 102, Doc said go to ER. I spent a week in isolation, no WBC's, they went down to .07. hemo went down to 8 and platelets down to 20. Pretty much a whole body crash, complicated by sugars running in the 500's from the steroids they had me filled with. But I made it through. There is some good news, we did the scans since I was in there any how. The tumor is gone!! The liver is clear!! there is "some" lymph node involvement yet, so not quite NED, but it is as far as he thinks he can get me for now, he says now we wait and watch, new scans in 2 months. So there's my update! Quote Link to comment Share on other sites More sharing options...
cathy Posted March 19, 2004 Share Posted March 19, 2004 Sorry to hear you were so ill, but it sounds like good news otherwise Quote Link to comment Share on other sites More sharing options...
J.C. Posted March 19, 2004 Share Posted March 19, 2004 What a way to get your tests done !!! and results right away. The news about the liver is the best. Now a rest for you, Hugs J.C. Quote Link to comment Share on other sites More sharing options...
Elaine Posted March 19, 2004 Share Posted March 19, 2004 Betty I had been so wondering about you. Sorry to hear you had some troubles but hey--that good news is hard to beat!!! I am keeping you close in my thoughts and hoping you are enjoying the good news. Elaine Quote Link to comment Share on other sites More sharing options...
Don Wood Posted March 19, 2004 Share Posted March 19, 2004 Bet, so sorry you had a bout in the hospital, but glad you got that behind you and your reports are so great! Take care. Don Quote Link to comment Share on other sites More sharing options...
Ry Posted March 19, 2004 Share Posted March 19, 2004 You poor thing. So glad you are out and doing better. Quote Link to comment Share on other sites More sharing options...
TheresaKB Posted March 19, 2004 Share Posted March 19, 2004 Hello, Sorry to hear about your 'crash' but so happy to hear about the other good news. Glad that you are up and about in no time at all. Theresa Quote Link to comment Share on other sites More sharing options...
MO_Sugar Posted March 19, 2004 Share Posted March 19, 2004 Bet, So glad they got things under control and you are doing so much better. Prayers for continued success headed your way! God Bless, MO Quote Link to comment Share on other sites More sharing options...
DeanCarl Posted March 19, 2004 Share Posted March 19, 2004 Betty, The next time you feel like getting some tests done ... just ask the doctor, ok? Seems to me it would be a LOT easier! Glad you feeling better. Dean Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted March 19, 2004 Share Posted March 19, 2004 Sorry to hear you had so much trouble. But it's good you're otta the joint and home! Please feel better soon. Joanie Quote Link to comment Share on other sites More sharing options...
berisa Posted March 19, 2004 Share Posted March 19, 2004 It is so good to know you are out from hospital !! And had earlier scans..... Quote Link to comment Share on other sites More sharing options...
Sam'swifeShirley Posted March 19, 2004 Share Posted March 19, 2004 Dear Betplace, I am glad to hear the good news regarding your scans and hope for the same in the future. Since I have become involved in the lc board, it is apparent that several, including Sam, have or had problems with low WBC'S or low RBC'S, a documented known side effect of chemo. Even with the Aranesp and Neulasta injections, Sam struggled to keep his counts up this past summer. As a matter of fact, during this time is when he probably picked up the aspergillis. My point is, while the oncs are working so hard at treating the cancer, let us not forget to treat the side effects. For example, would not more frequent lab work just to monitor counts be more cost effective than a week long hospital stay, not to mention the illiness of the patient. It is difficult to stay on top of everything with this treatment, but one must try. God bless us all. Sam'swifeShirley Quote Link to comment Share on other sites More sharing options...
john Posted March 19, 2004 Share Posted March 19, 2004 Great news. Shirley has some really good points. Anyway it is interesting that you had the fever. There is some research of fever and "spontaneous remissions" you can do a search on google. On another related note - there are clinical trials that are trying hyperthermia with chemo. I think they heat the chemo or somehow warm the body. I imagine it is probably very difficult to tolerate though, since the nausea and other side effects are so bad without the hyperthermia Quote Link to comment Share on other sites More sharing options...
OhioKat Posted March 19, 2004 Share Posted March 19, 2004 Great to hear the results of those scans.. sorry about the way you had to have them done though. Quote Link to comment Share on other sites More sharing options...
gerbil runner Posted March 19, 2004 Share Posted March 19, 2004 Yow. Well, sounds like your body was really inhospitable for the C-bugs! I keep thinking that 50 years from now, people will look back on our cancer treatments and be totally horrified at what cancer patients used to go through. Take care of yourself. Hope your next (excellent) scan is TOTALLY on-schedule ! Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted March 19, 2004 Share Posted March 19, 2004 So glad to hear you've been "sprung"! Love the sound of your test results. You deserved some good news! Soccermom Quote Link to comment Share on other sites More sharing options...
norme Posted March 19, 2004 Share Posted March 19, 2004 Thank is a terrific update. Good for you... Quote Link to comment Share on other sites More sharing options...
SharKats Posted March 19, 2004 Share Posted March 19, 2004 So sorry to hear about your hospital stay but that is wonderful news on the liver scan. My hem was at 9 last Friday and I had to start the "A" shots and B12 and she told me to take Iron 3 times a day. I could only find 50mg tabs tho and one is supposedly 277% of your daily requirement. I'm not sure about taking 3 a day. Has it been suggested you take Iron supplements? Anyway, take good care of yourself - glad you're feeling better!! Quote Link to comment Share on other sites More sharing options...
betplace Posted March 20, 2004 Author Share Posted March 20, 2004 Thanks for all the good wishes folks, I have spent the last 2 days napping and recovering and am feeling stronger tonight. I can tell the counts are going in a better dirction, here it is 10 pm and I am still awake, a minor miracle :LOL Now I just have to figure out how to keep the beast at bay and life will be good. Blessings Betty Quote Link to comment Share on other sites More sharing options...
ginnyde Posted March 20, 2004 Share Posted March 20, 2004 Dear Betty, What wonderful news about the mets. And, of by the way, I was snoozing on the couch at 9:00 last night. Ginny Quote Link to comment Share on other sites More sharing options...
Tiny Posted March 21, 2004 Share Posted March 21, 2004 Betty- Wow, what an up-and-down experience! Praying that you only have the GOOD news to report for now on! Keep resting and getting better. Quote Link to comment Share on other sites More sharing options...
-Cheryl- Posted March 21, 2004 Share Posted March 21, 2004 Betty, Sounds like you should be posting in the Good News section! It is ashame that the doctors have to take us close to death to kill the cancer. What a catch 22, huh? Sooooo glad that you are back and doing better. Hang in their girl!!! Cheryl Quote Link to comment Share on other sites More sharing options...
karen335 Posted March 24, 2004 Share Posted March 24, 2004 Betty, Sorry for the late post. Just read about your hospital stay. Glad to hera you are home and doing much better in a friendlier territory... God bless and prayers for continued healing, Karen Quote Link to comment Share on other sites More sharing options...
Carla Posted March 25, 2004 Share Posted March 25, 2004 Sounds like great news. Congratulations! Quote Link to comment Share on other sites More sharing options...
Guest Karen C Posted March 30, 2004 Share Posted March 30, 2004 Betty - you are proving yourself to be one strong woman! You endured all that and you're kicking the LC's butt along with it! you go, girl! Take care of yourself, I worry about folks like you who are single. God Bless, Karen C. Quote Link to comment Share on other sites More sharing options...
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