Guest Joyce Posted May 5, 2003 Share Posted May 5, 2003 Have been benefitting from all your info for a while now, but this is my first post. I feel it's time I attempted to contribute in some way. My father was hospitalized in FL Jan. 6, 2003, due to shortness of breath, and atrial fibrillation (which he'd experienced several times before during the previous 10 years). Something suspicious showed up on the chest x-ray, so they did a CT scan, which revealed a 4 cm mass on the upper lobe of his left lung. After 2 spirometries, 3 bronchoscopies's, a mediastinoscopy, a PET scan, etc. (some done in FL, some in ME), he was finally firmly diagnosed w/ non-operable NSCLC (squamous cell) on 4/18/03. After many frustrating delays, he finally received his first chemotherapy treatment on April 29, a combination of Gemzar and Carboplatin. Not sure if he is at Stage IIIB or IV at this point. My twin and I from the start have been keeping important information organized in a notebook, i.e.: Dad's medical reports, doctor's list, med list, family medical history, personal medical history, and miscellaneous helpful printouts from the internet regarding treatment options, staging, diet, etc. We keep a daily journal as well. Having all this information handy and easily accessible is especially important for doctor's appointments, phone calls, hospital admittance registration, etc. Mom keeps track of the insurance papers. These last four months have not been easy, but having this message board sure has helped. It's hard to say what things would be like for me right now if I hadn't found this site. Thanks to everyone! Quote Link to comment Share on other sites More sharing options...
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