Guest bean_si (Not Active) Posted April 4, 2004 Share Posted April 4, 2004 I don?t know who to believe. I have SCLC (I don?t smoke) and underwent radiation and chemotherapy at the same time. I am 58 and completely on my own. This was hard. The doctors acted like I was a miracle and the 8.5 cm tumor in my right lobe was dissolving. Dissolving? I purposely picked up the after radiation/chemo tests and found it was still 5.6 cm. After I reported seeing this report, they then gave me the ?maybe it?s all dead cell? but I?m doubtful. At first the radiation oncologist and medical oncologist (two separate doctors) talked about PCI after I told them that I heard brain metases could be as high as 40 to 50%. They expressed surprise that the percentage was so high and the medical oncologist asked if I was sure. Now, though I don?t consider myself anywhere near ?cure? they?re talking about PCI because they are NOW saying 50% of people get brain metases. (didn't they just debate that figure with me????) I pointed out that I had already had brain injury due to an ruptured (bleeding) aneuryism many years ago. My radiation oncologist of four months said: ?You had brain injury?.................Oh, yeah, you did.? I told them that no study had yet been done or reported on giving PCI to those with previous brain injury. They expressed they didn't know this. I have seen some anecdotal material (there?s been no actual study) that shows that people with MS or other brain injury have gone into coma and died after PCI. Also, although the first years after PCI generally go well, there are few if any studies of people surviving after 3 to 4 years with brain intact so the stats could be misleading. Yeah I know - if the cancer had gone to the brain, the person would be dead and not a participant in the study. Oh geez. I?m totally confused and have no where to turn. I don?t have the financial or social support to seek help anywhere but in my HMO community. I?m ready to try complementary meds: meditation, imagery, Chi Kung, anything. I feel caught between a rock and a hard place. I'm really scared. I hope this message makes sense. I would appreciate the smallest gift of help. Thank you. Quote Link to comment Share on other sites More sharing options...
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