Fall54 Posted May 2, 2004 Share Posted May 2, 2004 Ok, let me first tell you this is kind of a long story but I need to tell you all of it. I posted earlier this week about my brother's confusion and having problems keeping complete thoughts. Things have become worse!! Saturday my brother drove himself to the hospital thinking he was going for a chemo treatment. Apparently what he was going for was a shot to due with his platlets being low. He checked in and got himself a glass of water and then sat to wait.... From there things changed. He got up and went over to the supplies and started to put on the gloves they use in the hospital. When the nurse asked what he was doing he said he didnt know. She then asked what he needed the gloves on for and he answered( this is not something my brother would ever say) I thought we were going to have relations. The nurse said "I dont think so!!" She said he was acting very strangly and called for security and some other personal. She also called my brother who lives in the next town over and asked him to come in as Alan was acting strangly. Alan then went to the desk and started to take out all his money and was trying to pay them and kept saying he needed to pay his bill. There was no bill and he was told that. They asked him a lot of questions and he didnt even know where he lived. Luckily his oncologist was there and witnessed the whole thing. Alan was immediatly sent for a cat scan and blood work. Cat scan was negative and blood work was good except his liver enzimes were up and his platlets were down. His electrolites were fine. When he returned from the testing his DR and both my brothers and Alan's wife had a meeting. The DR asked my brother what was the last thing he remembered. He remembered driving there, checking in and getting a glass of water, the next thing he remembered was talking with security. Alan's wife had not been called as she has a lot of problems and has a very poor thought process herself and terrible memory and on many many medications. She, too is diabled. When they called my brother Gary they told him they were not sure who to call and chose to call him because they needed someone there that could understand and remember. Alan's wife just happened to call to see if he was through with his chemo yet and came in after she was told then. The oncologist told Alan he had had some type of episode and they were not sure of it's cause. They asked him when he had taken his meds and he said 9 AM, this happened at 1PM. they said it was in no way medication related. My Brother Gary went on to tell my Brother Alan some of things he had done and said and Alan was in dibelief.Gary told him that he had taken all of his money out etc and asked him if he had all his money. He reached in his pocket and out came a handful of gloves. Alan was shocked and afraid. The nurse there said she was scared and had never seen anything like this all the time she has been an oncology nurse. They told him he was not to drive as he may have had a seizure and it was very dangerous for him to be driving until they found out what had caused this. They have changed his chemo to once every three weeks vs 2 weeks on and 1 week off and the type. I still do not know what kind he was having or will have, but plan to call his DR on Monday. He has to take some sort of medication twice a day for 3 days ( the day before chemo. the day of, and the day after) They have also set up a ecg??? to check for seizure activity but that will take a few weeks before he has that. When Alan returned from having the cat scan and blood work the episode was over and he was fine. I know my Brother and he will continue to drive putting others and himself at risk, as his DR said if this happened again while driving he wouldnt even know he was driving. We are so afraid! We are also afraid that if this happens again, he may take medication that he shouldnt or who knows what he may do not knowing what he is doing or saying. I told you this was going to be long!! It is the blind leading the blind at his house and a very bad marriage to boot. Alan wants his independance and that is why I think he chose to give his wife another chance rather than coming to live with my family. SOMEONE needs to be in control of his medications, appointments etc and he does not want to give up that control which I understand, but this HAS to be an eye opener!!! We are at a loss as I live 3 hours from him and provide a home for 3 mentally handicapped men as my job and have done so for over 15 years. My husband does it too so it is well managed. The problem is we want more for Alan than he wants for himself, and we are so worried. How can we help him?? He shuts us out or should I say tunes us out when we are saying things he doesnt want to hear but he has become a danger to himself and others. Alan is the sweetest guy you could meet and has the biggest heart and is so loved by his family of 4 brothers, 3 sisters and his Mom. Gary is the only one that lives in Maine, the rest of my family lives in NC and I am here in NH. Alan would only come to live with me and I know that to be a fact but has to understand and accept the fact that he needs us now. At some point ( because I beleive in miacles) maybe he will be able to manage on his own again but now is not that time. Q I have never heard of having a seizure and walking around and talking during it. Has anyone else?? Q The liver ezimes being elevated means there has been growth.. is that right? Q What are we to do???? Thanks all for bearing with me through this saga and I will appreciate anyone that posts . God bless you all. 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