JoniRobertWilson Posted May 27, 2004 Share Posted May 27, 2004 My husband was diagnosed on 3/17/04 with limited stage SCLC. Over three weeks ago, I found a lump in his back. I called the oncology nurse and she said she would have another nurse "check it out". My husband was there that day getting chemo. Never heard back from the nurse. I called later that day and was told - it was "fatty tissue" and that he was being monitored closely and I shouldn't worry about that......ok, during that period my husband had started complaining about massive pain. Last Monday we went for a chest x-ray. The chest x-ray showed that his right lung was collapsed and that he body cavity was full of fluid. No one called us. I called on Wednesday and said I was brinign him up....they called back and had requested the x-rays. Scheduled for him an appt to get the fluid drained. Drained 2 1/2 liters. Ok, they schedule NO follow up so I called the family doc and she scheduled another chest x-ray. Showed fluid again. They said see you on Monday at the oncologist. Nice. Monday they said, this sin't good news. Scheduled us to see a surgeon. He went in on Tuesday and had a 4 liters drained again and the surgeon found more cancer than we had ever thought. They did pathology and are now saying it is showing as NSCLC. Said the SCLC was probably wiped out by chemo. Oh, and the lump on his back which I was basically told to buzz off about turned out to be cancer. The doctor doesn't give us much hope so we're heading to Houston. I know from reading a few of you have had change in dx. Please let me know about this - should we have been treating this all the same no matter if it is SC or NSCLC? Seems like it would be different but doc says no. Quote Link to comment Share on other sites More sharing options...
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