KatieB Posted June 2, 2004 Share Posted June 2, 2004 My name is "KatieB". This began for me after my dad was diagnosed with extensive sclc Friday, September 13, 2002. I didn't know anything about LC. What I learned from the web scared the beegezus out of me. That's when I searched for survivors...and I only found a few. I asked my husband to create a web site dedicated to my father's survival and emploring survivors to come and tell their story. Rick and I collaborated and LC Help (http://www.lchelp.com) was created and eventually morphed into LUNG CANCER SUPPORT COMMUNITY (LCSC) and with "Rick" at the technical wheel this entire journey, things have been relatively smooth on that aspect. Once I obtained non profit status, we officially became Lung Cancer Support Community, our goals are supporting those diagnosed with lung cancer and their family members online and in our communities. Pretty soon membership grew in the dozens, then hundreds, now we are over 7000+ strong. The pioneer members here carried me emotionally the first 6 months of my dads diagnosis. I learned about treatment options and medications and how to handle side effects. This became a place that I came to post and vent and cry and always, ALWAYS, someone knew how I felt and had something warm to say. I firmly believe advocating for my dad's medical care, the friendships made here and because of other peoples personal experiences with this disease and their knowledge of what was out there, my dad outlived his original prognosis of 2-4 months. He lived to see our website's birth, watched our work and watched us begin to grow, and he read many of your stories and asked about many of you often! He passed away September 6, 2003. We had 11 months and 21 days of living life together to the fullest with absolutely no regrets. I miss him every single day. I also have been a delegate for the Lance Armstrong Foundation- local and national, and I am a 15 year cervical cancer survivor. I am not a "survivor" of LC, but I have survived this disease as a caregiver and as the child of someone who did not, and my goal is to work together with the board of directors to support those diagnosed with lung cancer, raise awareness about the disease, and eventually one day raise enough funds to aid in the search for a cure. In 2007 I suddenly lost my (healthy) mom of a stroke. My mom and dad are together again. I was on the board of directors of GRACE- Global Resource for Advancing Cancer Education from it's inception until 2010. I am the event founder and coordinator of DFW Walk for LUNGevity http://www.lcwalk.com I facilitate an in-person Lung Cancer Support group and I attend events and advocate nationally and locally in support of a CURE for all cancers. I have been married to Rick for 20 years. We have a 13 yr. old son and a 7 yr. old daughter. I'm sorry you had to find us, and I wish a place like this didn't have to exist. But you'll not find a better group of people, and you've come to the right place. All my best~ KatieB ***UPDATED*** 8/2006 We are proud to announce that LCSC is now funded and a service of LUNGevity Foundation. Thanks to the LUNGevity Foundation, we will continue supporting all those touched by lung cancer! Quote Link to comment Share on other sites More sharing options...
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